Balance problems after intravesical mitomycin for bladder cancer

Hi, has anyone else had balance problems after mitomycin? One week after TURBT and intravesical mitomycin, I can't walk straight. I lurch as if drunk (and I dont drink). I have had the initial dose, plus 2 of the 6 proposed, and am virtually housebound. This is far worse than the chemo itself. Doctors say its not usually a side effect and will get better, but I'm worried it's ototoxic. I already have chronic kidney disease from reaction to omeprazole.  Thanks. 

  • Hello and welcome to Cancer Chat, Elfi.

    I'm sorry to hear about your situation and hope that others who have faced similar problems will come along shorlty to chat with you and offer advice. In the meantime I found a page on our website which talks about mitomycin and its possible side effects so I'm sharing this with you.

    In addition, if you feel like asking some questions to our team of nurses, they'd be happy to chat with you Monday - Friday between 9a.m - 5p.m on this freephone 0808 800 4040.

    I hope this helps.

    Best wishes,

    Renata, Cancer Chat Moderator