A very warm welcome to the forum Donny although I'm so sorry to hear about the swelling. As you say, this must be very frustrating, especially when the doctors are unable to figure out why this is happening.

Hopefully some of our members who have experienced this will be along soon to share their experiences and advice but if you'd like to discuss this further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

I'm not sure if you're already in touch with the charity Lymphoma Action, but if not, they may also be able to offer you some insight and advice on this as well.

Kind regards,

Steph, Cancer Chat Moderator