Cancer confirmed October high grade serous carcinoma

Hi, I am 49 and was put on a 2w rule in October and shortly after told I had cancer, thought endometrial.but also in cervix.  By December has a full robotic hysterectomy and hernia repair.  The following day was told it had metasized to my omentum so this was removed for biopsy.  January attended for results of biopsies and it was confirmed both ovaries and fallopian tubes, cervix endometrium, uterous and omentum were all affected.  It is rare for someone my age and it is not genetic so baffling the oncologist.  He can't confirm a primary so has decided to run with fallopian tube cancer at stage 3b for best treatment options, otherwise I would be 4b.  My 1sr chemotherapy of 6 was a week ago and I am now feeling a lot better physically but mentally I am lost.  Have been fine till now but I think the reality of a fast growing cancer with a high recurrence rate has finally hit home and the unknown of how long I  may have is scary, I am in unknown territory and struggling with the changes in my appearance.  Not sure if anyone else is going through the same to discuss their experience?

Parents
  • Hi Ruzz, so sorry to hear about your diagnosis, it is such a scary time. I got diagnosed with a fast growing breast cancer in January, which is hormone fed and I too worry what the future will hold. I have always considered myself to be a fit and healthy grandmother and wish to be here to see my grandkids grow up. Glad to hear your first chemo went OK, I have mine on Monday. Although I feel prepared, I'm really apprehensive about it. Good luck with the rest of your treatment. I know what you mean about struggling with appearance. I've just had all my hair cut off in preparation for it falling out fairly soon and it seems strange. I did go out yesterday though to get my wig, which I'm happy with. I wish you well with the rest of your treatment and would be happy to keep in touch. Xx

  • Hi Pippin, lively to hear from you.  I hope all goes well on Monday for you.  I had carboplatin and paclitaxel, for me days 2 to 4 were the worst for lethargy and neurological issues, but by a week, felt more normal.  Lack of bowel movement caused a lot of pain but next time will start on the Laxido drinks to stop it happening. I know what you mean about worrying what the future will hold but I am working on yesterday is the past, tomorrow is the future but today is the present and what a present that is!!!  My son is 19 and hopefully I will be graced with beautiful grandchildren and enjoy it.  It is lovely to hear from you and always here for a chat xxx. Let me know how you get on and we can swap notes!!  My next chemo is next Friday, just after yours.  We can swap notes!!!  xxx

Reply
  • Hi Pippin, lively to hear from you.  I hope all goes well on Monday for you.  I had carboplatin and paclitaxel, for me days 2 to 4 were the worst for lethargy and neurological issues, but by a week, felt more normal.  Lack of bowel movement caused a lot of pain but next time will start on the Laxido drinks to stop it happening. I know what you mean about worrying what the future will hold but I am working on yesterday is the past, tomorrow is the future but today is the present and what a present that is!!!  My son is 19 and hopefully I will be graced with beautiful grandchildren and enjoy it.  It is lovely to hear from you and always here for a chat xxx. Let me know how you get on and we can swap notes!!  My next chemo is next Friday, just after yours.  We can swap notes!!!  xxx

Children