Hello Lisa1068, 

I am sorry to hear about your Kaposi Sarcoma diagnosis and I hope that you will find out soon which of the 4 types you have. I hope that you will have the CT scan soon and that it hasn't spread internally. 

Other members of our community might have been diagnosed with this rare type of soft tissue sarcoma and I hope that they will be along shortly to share their experience with you. If you wanted to talk to one of our nurses about it, don't hesitate to ring their helpline on this free number 0808 800 4040 - it is open Monday to Friday from 9am to 5pm. 

I hope that you find out more very soon and get a bit more clarity on what to expect after you have had your CT scan results. Keep us updated if you get a chance.

Best wishes, 

Lucie, Cancer Chat Moderator