Initial diagnosis of DCIS but..

Hi, 

I was told 2 days ago that my breast biopsy showed DCIS however they are doing further testing (with contrast I think he said) because some of it is suspicious for invasive cancer. Has anyone else had this happen? I thought it would be a pretty clear result, I’m having major anxiety with all this unknown, really struggling to function. 
Thanks. 

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  • Just giving this a bump, anyone have a similar experience? Thanks.

  • Hello Em24ma, sorry to hear you're going through such a stressful time. I was diagnosed with breast cancer a year ago. The consultant initially thought it was invasive (cells had broken out of duct) because she could feel a lump. The pathology report post-surgery came back as DCIS but they then carried out further tests to see if any cells (even one or two) had broken through the duct (DCIS with micro-invasion I think she said). This delayed the results. The final report said DCIS but I still had radiotherapy as planned. Hope this helps!

  • Hi, that’s very helpful thank u, I didn’t know it could have micro-invasion. I have a small lump and some calcifications. I’m only at the biopsy stage though so I don’t know what they can tell from just a small sample. Can I ask what kind of surgery u had? Just removal of the lump or mastectomy? 

  • Hi again Em24ma, I had a small lump (which I totally missed) and calcifications too. My cancer was 3 cms and I had a lumpectomy. The whole process from investigation to end of treatment took just over four months. For me, the waiting for results was the worst bit. 

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