Hi. New to the community as I've only just been diagnosed.
It started with headaches in November 2023. Thinking eye strain I went to opticians to review my prescription. They referred me to the Eye Clinic at my local hospital due to worries on the Field Test. The clinic saw some swelling, so I was referred for CT and MRI scans. They revealed a brain lesion. Soon after, the term Brain Tumour was used. I had it debulked on 12th Jan, but need radiotherapy to get the rest. Starting March. Unfortunately the genetic markers of the tumour cells they were able to test, confirmed its stage 4 molecular glioblastoma. So also need chemotherapy at the same time. That was quite the punch to the gut. Especially when they used "months" for survival rate. I am only able to type this as I think I'm still in denial... This is all so new and sinking in that I haven't told my family yet (sisters, and dad) I do plan to but I can't answer their questions yet and want them to stay blissfully unaware for awhile. So far it's just me and my husband in the know.
I would love to hear from anyone else with this kind of tumour and how long you've had it (looking for hope for longer time with my family) ..but also any tumour. Any top tips for readying the body for treatment and the fight to come?
Love to all. I can't believe I'm one of the unlucky ones to get this disease... You never think it will be you.
