Hi Helegogs,

A very warm welcome to our forum.

It is only natural to feel worried at this stage, as there are still a lot of unknowns. It does get easier once you know exactly what you are dealing with. Most people don't tell family and friends until they have the full diagnosis. What ages are your children?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx