Hi Robin 

I had a double mastectomy.  For me I had two drains each side and a pump each side do six tubes in total.  Like you my husband had to drain and measure fluid but just once a day.  When my fluid went below 20 for two days they removed drain.  Took 10 days for all 4 drains to come out  xxx 

It seems every trust / surgeon has their own direction so be guided by yours. 

wishing you well with your recovery 

xx 

Hi Carol, good to hear that you're ok, sounds like you're doing the right thing and resting when you need to. I am pleased to hear that you had a lovely dinner, with the ladies you met on the Moving forward course. It seems like you have made some lovely friends by going on this course. Will have to think about some courses, when I finish treatment. It will be good to get the radiotherapy out of the way, although I'm not looking forward to the travelling every day. Oncology did mention about moisturiser, but not specific products. Hopefully, will get advice on my first appointment, when they do tattoos. The dressing they used on my wound this week, actually goes into the wound, glad hubby doesn't mind changing it, as don't think I could. Meant to ask oncology if I can continue with venlafaxine tablets (for hot flushes), now that I'm raking letrazole, hopefully won't be an issue. Well done for joining in with the Macmillan fund raiser, I hope it all goes well. Have a great weekend. Xx

Hi looks like you had busy but I formative oncology meeting.  Agree better to stick with sa.e Oncology  Trust just for ease of continuity.  Hope your wound heals soon.

Hi NGS   I had my first session today - 6 planned all being well if no serious reactions.  You have had quite a journey.  I will have my mastectomy after treatment but cannot have reconstruction because it's inflammartory bc so all skin is removed so I will be flat.  Was wondering whether to ask Consultant when we meet if they could make the other boob smaller just to equalise it a bit!!!

Hi ROBIN71, sorry I must have missed your post and would have sent you a message to wish you, good luck. Hope everything went well for you today and that you're feeling OK. Try not to worry too much about side effects, Im 62 and my side effects were minimal. Let me know how you're doing, when you feel up to it. Xx

Hi NGS, just wondered how things went with your oncology appointment. I hope they were able to give you some reassurance regarding your pain and that you don't feel so anxious now. Have a good weekend. Xx

Hi Greeny80, haven't heard from you in a little while and just wondrred how everything is with you. I know you had some scans done and were seeing your oncologist on the 5th. Hope everything is OK, drop us a message when you can. Have a lovely weekend. Xx

Hi Pippin 

all good here.  I had second bone infusion on Tuesday and have avoided a and e like before 

saw oncologist Wednesday who has reassured me cancer not spread to bones.  The second cancer although high grade was not invasive and had not spread so the mastectomy got it all out.  Such a relief to know.  He was concerned though by my level of pain and peripheral neuropathy.  Has stopped my medication - letrazole as certain it is that and to give my body a rest.  I’m going to move to a different medication in 4 weeks but honestly if pain is the price and it isn’t the cancer spread I’ll suffer it 

How is your recovery going ?  Hope you are improving with every day 

xx 

How are you feeling.  One down - keep focusing on that end goal.  I’m sorry to her you can’t have reconstruction.  Being cancer free if the main thing.  But just a thought. I have BRCA1 so had to have all tissue right up to skin removed.  My surgeon did tell me if he couldn’t save my skin or if there was cancer in the nipple there was a way he could make a breast from skin at my back flap and pull it round.  That said my cousin went flat and she absolutely rocks life.   
I hope side effects are minimal.  We are all here to help 

I second Pippin - Polybalm was brilliant.  I ordered mine from Amazon.  I also highly recommend look good feel better. You get lots of goodies and it was a godsend - look them up they have lots of courses on hair / eye brows and make up 

xxx stay positive - you’ve got this 

Hi Nedb 

I had a double mastectomy.  For me I had two drains each side and a pump each side so six tubes in total.  Like you my husband had to drain and measure fluid but just once a day.  When my fluid went below 20 for two days they removed drain.  Took 10 days for all 4 drains to come out  xxx 

It seems every trust / surgeon has their own direction so be guided by yours

wishing you well with your recovery 

xx