FIT NUMBER

I had a FIT number of 168 it came back as abnormal i had a colonoscopy which confirmed i have a 5cm tumour i am now having a CT scan it has been booked as urgent but i have not heard back yet , depending on the scan i might have to have chemotherapy before an operation should it go ahead, i must admit i am a little scared but putting a brave face on it , i would love to hear other people’s experiences to help me make more sense of it , the waiting is agony 

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  • Same here: had FIT score of over 200, so was sent for colonoscopy and then told I had a tumour.

    My CT was arranged super quick (colonoscopy was Wednesday,  CT was that Sunday) but I had to have other scans (MRI and then PET) because of where the tumour was (between colon and rectum) which took longer. Worst bit was not knowing what the scans had shown and having no idea about next steps. I've now been told they need to do chemo and/or radiotherapy before I can have any surgery. Hoping to find out what that will involve next week.

    The urgent cancer pathway seems to work well at my hospital (I'm in Berkshire), so things really have moved quick. It is still so stressful when you are just waiting to be contacted though. 

    Xxx

  • I actually don't know (didn't think to ask at the colonoscopy). I know that it is localised in the bowel, no spread to other organs, which is good, but there is some lymph node involvement which is less good. Have oncologist appt this Wednesday so hoping to get some clearer information about exactly what all the various scans showed (as well as what I'm in for treatment wise, obviously).

  • Good luck on weds i am waiting for a ct scan next Wednesday week, not worried about the scan just worried about what they might find , are they operating on you  ? Do you have fatigue weight loss ? 

  • Thanks. Good luck to you too for the scan.

    I think the idea is to shrink the tumour a hit first, and then do the surgery to remove it. The nurse I spoke to said this was very common for rectal cancer (my tumour is 'rectosigmoid' which means it's at the top of the rectum / bottom of the colon). Not sure what the timescales are - hopefully will find out tomorrow. 

    I am very tired and have lost a bit of weight, but I think that's the stress rather than the cancer per se.

    How are you feeling (apart from worried obviously)?

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