Myeloma - 44 years old felt on top of the world yesterday and now in despair

Hi guys , last Monday I played tennis and that evening had a very dehydrated wee dark and funny smell. On Tuesday I went to hospital with a suspected kidney stone. It was a very dull pain but having seen my brother go through it last year I wanted to get ahead of the real pain so I went to A&E to get a painkiller/ relaxant and after half an hour I felt absolutely fine. The doctor asked me if I wanted to have a CT scan to see where it was positioned. I raised concerns that it might increase my chances of Cancer but she said the risks were justified. So I went and after talking with the radiographer turned back saying that I wasn’t going to do it. 15 minutes later having spoken again with the A&E doctor I went back and did the scan. Multiple lucencies in my pelvis. 

That’s when I started to feel the gloom start. “It could be xyz or it could be cancer”. 

I was told to return on Friday to discuss my blood results. On Thursday I received a message out of the blue saying that an appointment was booked for me at MacMillan Cancer next Wednesday. The shock of my life. 

I then got a call from Haematology at the hospital asking me to come in for a chat where I was told my Kappa was at 15000 and my Lambda at 2500. This meant nothing to me at the time, but I was presented with no other option but immediate Chemo and a stem cell transplant in 5 months time. There was talk of a  The shock of my life. Survival rates are median and I’ve read the most 

Its worth saying that I never felt better or fitter than just before the moment I got that message. I thought I was the picture of health. I have a 3 year old daughter and a one year old son. Needless to say I am desperate and I don’t know what to do. I’m awaiting the bone marrow biopsy and whole body scans.

If there’s anything you can share with me to strengthen my resolve, help me to get through this difficult stage and give me some perspective it would be much appreciated. I have not slept for a week! 

  • im scared too ...but try n stay strong no one knows what the future holds. iive ife and cherious those u care and love .its a tough old world that keeps throwing those curve balls.

  • I am sorry to hear about your diagnosis. My brother-in-law was diagnose with Myeloma 3 years ago. He was a very healthy 58 years old at that time. He had several rounds of chemo, stem cell transplan and has been taking cancer drugs. I don’t remember the name of the drug. He has been treated in Switzerland (he is Swiss) and his doctor (who is German) commented that this was a very expensive drug and it wasnt prescribed to patients in Germany yet. I remember he struggled at the beginning and it was very tough on my sister. His cancer is now in remission. He retired last November and now lives in Thailand a house few minutes walk from the beach. There is a beautiful life after cancer. You are a healthy 44 years old, the odds are in your favours. Good luck and let us know how you are doing x