Cancer Research UK main site

Uveal melanoma (eye cancer)

Clarabee
Offline

Hi, I have just been diagnosed with uveal melanoma, they have told me I will be going for radiotherapy treatment within the next 4-6 weeks. They have explained the procedure well. But I'm worried ab t it , any advice would be gratefully received thank you. BTW I'm a 38 Yr old single mother ,

  • Offline

    Hi Clarabee,

    I'm sorry to hear about your diagnosis. I don't have any experience of this rare type of melanoma (mine is superficial spreading) but I do know there are several members on here who have posted in the past. Hopefully they will come along and share their experience but meanwhile I suggest you search either Uveal or Ocular Melanoma in the search engine (the spyglass) at the top of the page & you will see their posts. Also, can I suggest you take a look at this website which is great for information and they also have a support group you can join OcuMel UK - Supporting anyone affected by ocular melanoma

    I will also send you a friend request in case you would like to chat & I can share general melanoma information with you by pm.

    Good luck and I hope your treatment goes well,

    Angie (Stage 3 melanoma patient since 2009)

  • Offline

    Hi! I was diagnosed with uveal melanoma in Aug 2022 and had PBT in the November. Not sure whether you are having PBT or plaque treatment? Depends on size and location of tumour. The procedures you will have might seem scary at first, but the reality is that you will be well looked after and supported. I recommend that you search out OcuMel UK who offer advice and support for all ocular melanoma sufferers. They have a Facebook a group - OcuMel UK Patients Group - where you can ask questions and where there is a huge range of experience and advice. Hope all goes well!

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.