Diagnosed with two types of breast cancer

I had my results at the hospital today and I have two types of breast cancer. Invasive ductal carcinoma and lobular, both very treatable. Need to stop HRT as they are oestrogen receptive (if that's the right term). Waiting to find out if HER2 positive or negative. Also need to have an mri and a ct scan. Dr was lovely and so reassuring and I feel so much more calmer than I have for the last week. I did speak to her about my fear of inflammatory breast cancer because of the redness on my breast. She suggested a skin biopsy to put my mind at rest and is seeing me again next week, hopefully the HER2 result will be back by then. Will definitely need surgery, not sure yet whether lumpectomy or mastectomy. Also radiotherapy and hormone blocking tablets. not sure about chemo until all results are back.

  • Just got appointment for mri on Tuesday, so things moving along quickly, which is good. Still need appointment for ct scan and results to see if I'm HER2 positive or negative. They can then work out if surgery comes first  or chemo and then surgery.

  • Hi Pipppin,

    That's great - not too long to wait. Here's hoping that the CT appointment comes through quickly too and t you can then start to move forward.

    Kind regards,


    Jolamine xx

  • Hopefully things will move along quickly. I have tried to be quite positive and strong since being diagnosed on Thursday. I was calm when talking to the dr and when telling all the family. But I had a bit of a blip last night as I couldn't sleep. Had been taking Nytol since biopsies to help me sleep, but decided I couldn't keep taking long term, so didn't take any last night. Laying awake last night I felt a bit lonely and scared. My biggest concern at the moment is the fact that cells showed up in a lymph node (although Dr said she expected to see this). I worry that it could spread while waiting for treatment to start, even though Dr said it won't spread that quickly. My cancer feeds off oestrogen and I had been on hrt, but have stopped it now. Think I need to stop overthinking everything and trust in the dr.

  • Hi Pippin,

    It is normal to experience all sorts of emotions after you receive a diagnosis. Anger, denial, disbelief, despondency, fear, insomnia, etc, all come into play. I can understand your worry that it is in a lymph node, but it is only in one and that should be easy to deal with. It is most unlikely to spread, while you are waiting for treatment to start. It is good news that the cancer feeds off oestrogen. This means that you will have to stop your HRT, but it also means that you will respond to hormone therapy.

    It is all too easy to overthink things, Trust in your care team, There are a number of different professionals involved in your care, behind the scenes. They meet regularly at MDT (multi-disciplinary team) meetings to discuss your case and the best treatment for you. It is always frustrating when you need extra tests, but remember, that this is so that they can target your cancer with the best possible treatment. 

    Kind regards,

    Jolamine xx

  • Thank you Jolamine for your reply, it's always so reassuring. Today has mot been great and I have felt a bit anxious. Very strange, as the day I received results and told family, I felt really calm. Just feel like I'm in a bad dream that I want to wake up from. Have visitors arriving shortly, although not really in the mood it will probably do me good. Hopefully, seeing the Dr again on Thursday will help me feel a bit calmer. Xx

  • Hi Pippin,

    Although you didn't realise it, you were probably still in shock when you got your results and this is why you felt so calm. How you are feeling is perfectly normal. It will get easier once you move on to treatment. It's probably as well that you have visitors tonight, as it may help to take your mind off this. Here's hoping that Thursday brings some answers.

    Kind regards,

    Jolamine xx

  • Had a great evening with lovely friends, feeling much better. Hopefully will get a good night's sleep tonight. Think you are right that it will get easier once treatment starts. Will let you know how it goes on Thursday.xx

  • Hi Pippin,

    I'm delighted to hear that you enjoyed having your visitors. Here's hoping that you have a good night's sleep tonight. There is no doubt about it, irrespective of the outcome, you will feel better once you get the final diagnosis. This takes you out of the "unknown waiting room" and on to fighting this disease, which is much more positive and easier to deal with.

    I look forward to hearing how you get on on Thursday.

    Kind regards,

    Jolamine xx

  • Thanks Jolamine, had a good night's sleep and have woken up feeling so much better. Off to visit my elderly parents today, so they can see that I am fine, don't want them worrying. I will hopefully have more info on Thursday, after that it will just be the ct scan I'm waiting for. It's the ct scan that worries me a bit  Really hoping some sort of treatment will begin in February. Xx

  • Hi Pippin,

    I'm glad to hear that you slept well last night and are feeling a little better today. You will find that, even if you're not feeling it, the more positive you can appear about the outcome, when telling others, the better they will take the news. Why are you so worried about the CT? This will give you the answers you want about treatment and help you to move on to the next stage.

    Regards,

    Jolamine xx