Dad diagnosed 6 weeks ago.

My dad (76) was diagnosed with Plural Mesothelioma about 6 weeks ago after talking to a nurse about a cough and minor chest pain about 6 weeks prior. After loads of tests, scans and biopsy we got the terrible news.

First I would like to say the speed of all the test and scans was impressive. Well done NHS. 

A week before all this started he was in his garden smashing concrete up with no issues. He potters in the garden does DIY all the time. I (Son) did not even know he had any chest pains.  

Since he got the diagnosis, chats with medical people and Google research. He literally has got every symptom he's read about or told may happen and dose not move from his chair in the front room. Hardly eats either, says he has no appetite which we know can happen. So I got him supplement shakes he only has now and again. We try to take him out for a walk or somewhere but he always says he's in pain. My Mum is getting so worried. My sister came back form Australia for a few months but went home 3 days ago. I work offshore for 2 weeks at a time. We have no other family.

I'm not in denial or don't believe its real but he seems to have given up. if we cant get him to move and eat. He will have a lot less than the 12 months the doctor said as a guide. In a way I wish he never found out. I feel abou 60/70% of his symptoms at the moment are psychosomatic.

My friends Dad died of this a few years ago and he was not like this till near the end, I understand we are all different.

He starts immunotherapy this Tuesday 9th Jan. I told him a few weeks ago after reading all about treatments If you loss to much wait your be worse. When he see's the doctors or nurse he is a different person. Tells them he's very active everyday and eats ok. Complete lie.

He is ok when I chat to him says as he is 76 he is not worried. He says he has had a good innings. 

Maybe he is only getting treatment for us. I don't know. 

Just want to help him and Mum.

  • Hi Max2010,

    I'm sorry to hear about your dad's diagnosis. When a diagnosis like this comes, it can be difficult to know how to feel or how to continue with the things you used to do. It's good that he seems to be ok when you chat to him, but it's easy to bottle things in and sometimes we all need that reassurance that we can talk to our loved ones when we're not feeling ok. There is some advice on how cancer can affect people's emotions here and ways of coping here. I hope this will be useful for you to improve communication and help the family to better support each other.

    All the best to you,

    Moderator Anastasia

  • Just another question? He had his first dose of immunotherapy Tuesday but is had to tell as he just lays in the chair in the front room where he sleeps as well. I read his booklet the hospital gave him with him. He is not interested at all. Says he is in pain every time we try to get him the walk to end of road and back(100m). He is getting aggressive with my Mum all the time. We don't know what to do. He hardly eats at all and never moves from the chair. Can all the Morphine and Immunotherapy trigger Dementia, His Mum got it around this age and she had no other problems. We can't force him to eat or move. Its making Mum stressed all the time. She is terrified to say anything. Any suggestion. Is this normal?

    Thanks for any help.

    Max   

  • Hi Max, 

    Moderators are not medically trained so we're unable to answer these questions I'm afraid.

    If you're worried and have access to some of the contact numbers for your dad's medical team it would be best to get in touch with them to discuss your concerns as they are in the best position to give you the answers and advice you're seeking at this time.

    Our cancer nurses team will be available next week between 9a.m - 5p.m on 0808 800 4040. They are very insightful and will do all they can to help you as well.

    I can't begin to imagine how difficult and stressful this must be for you all but our community are here for you and hopefully those who have been in a similar situation with their family members will be along soon to offer their support and advice.

    Kind regards,

    Steph, Cancer Chat Moderator