Hi I’ve been diagnosed with this very rare cancer I’m 55 year old woman .Terrified as I can’t find anyone who has had this.Im aware it’s aggressive and chemo doesn’t work.Just had a stent put in hra but consultant couldn’t get into kidney as urethra has a blockage I just want answers I Can’t wait 4 weeks for him to try and get back in again I want to know things as the scabs and the extra h white counts that isn’t an infection .Sorry waffling on