Newly diagnosed Grade 1 - Breast cancer

Hi, I’m a newbie here.

i found a lump in November, after being sent for a mammogram & scan, i had to have a biopsy. I could kind of tell both the person doing the biopsy & nurse thought it was cancer.

i tried to cope over Christmas & kept it to myself whilst hosting & then yesterday i had my appointment for the result & found out it was a grade 1 invasive, hormone positive breast cancer to my left breast & one infected lymph node.

i was told i need a CT scan so they can get a full picture before planning my treatment.

Even though i thought i had it, im today a complete mess! I haven’t managed work & i cant stop crying.

im aware that i have the best news in terms of grade 1 & it being hormone positive, but i have this huge fear it has spread.

For around 6 weeks ive had sharp pains in my ribs, what i thought was a trapped sciatic nerve in my back which has left me with cronic hip pain & bad shoulder pain, im scared this is linked & its spread & just wondering if anyone else has experienced this, i feel like an old person & i was fit (im 43). The consultant thinks its unrelated & just old age, ive convinced myself its spread to my bones.

Ive a two week wait for CT followed by a further week or so before a follow up for the results. I have an 8 year old & I cant look at him without crying.. :(

Parents
  • Hi Red,

    A very warm welcome to our forum.

    I am sorry to hear that you are in the unenviable position of waiting for final results still. This is always a worrying wait, but it is worth it, to get a clearer picture of what your care team are dealing with. Pain is seldom accompanied to breast cancer, which is usually painless. 

    I had 2 bouts of breast cancer, within a year of one another. I had also lost my mum to secondary breast cancer, which had spread to her liver, lungs, bones and brain. I always thought that I would follow in her footsteps and that I was prepared for this. However, the reality was so much worse than I imagined. I was absolutely terrified, cried all the time and was a total mess. That was all 14 years ago and, with the benefit of hindsight, surgery and treatment was so much easier than I had expected. Mine was stage 1 and hormone positive too.

    I have a lot of bone pain and have just had a CT, to be told that there is no cancer present. I sincerely hope that yours will be clear too. Don't worry about the crying - this is a good stress reliever. We all tend to over think things at this stage. You'll still be here for him for many years to come.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hello Jolamine

    thank you so much for replying to me.

    im so sorry you have this illness & sorry to hear of your mum passing.

    im so so glad to hear that you were treated & are still around to give people like me the courage & comfort to get through this.

    my CT results are tmrw, so im a bit of a mess today. I think i will be much better after i understand what im facing.

    thank you again, the support I’ve received here means so much right now.

    sending my best wishes xx

  • Hi Red,

    You'll be glad that your wait for results is nearly over. I shall be thinking of you tomorrow and hope that nothing untoward has been found. You will feel better once you know exactly what your'e dealing with. If there had been any further spread, I would have expected more of your lymph nodes to be affected, so I'm keeping my fingers crossed for you, that this is not the case.

    The Macmillan centre at the hospital is a great place for advice and help on all sorts of practical matters. Maggies does offer help and guidance too, but is more there for support. They also offer various alternative therapies and counselling. There are a number of cancer centres around, if you don't have a Maggies near to you. Ask about these at the Macmillan centre, at your GP's surgery, at the hospital or at your local library.  All offer a friendly ear and a chat, although the names vary and the services offered, can vary from one centre to another. 

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    Unfortunately the pains i have been feeling were confirmed.

    The CT has shown stage 4 secondary cancer to my liver & hip.

    im an absolute mess, i have the oncologist today to talk about treatment. I cant quite believe this is happening.

    life is very cruel, im heartbroken  

  • Hello Red888, I am so sorry to read your news . That is a shock , so much to get your head around too.Life isn’t fair ! 
    Good to sort out a treatment plan now and try and stay positive . Good job you pushed for more investigations . 
    Thinking of you ,big hugs and keep in touch xx

  • Hi Red,

    I am so very sorry to hear this. No matter how well prepared you think you are for a result like this, it still hits you like a freight train. It will take a while for your diagnosis to really sink in. How did you get on with the oncologist today? I hope that they were able to offer you some treatment.

    Don't look too far ahead just now, take things one day at a time and you will cope.

    Please keep in touch and remember that we are always here for you.

    Kind regards,


    Jolamine xx

Reply
  • Hi Red,

    I am so very sorry to hear this. No matter how well prepared you think you are for a result like this, it still hits you like a freight train. It will take a while for your diagnosis to really sink in. How did you get on with the oncologist today? I hope that they were able to offer you some treatment.

    Don't look too far ahead just now, take things one day at a time and you will cope.

    Please keep in touch and remember that we are always here for you.

    Kind regards,


    Jolamine xx

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