Hi Red888, 

Sorry you find yourself here. You are not alone, I am 38 and was recently diagnosed with Grade 2 invasive cancer with high grade DCIS, like you I am thankfully hormone positive. I am due to have SNB next week but they have said this is precautionary as everything looked clear on my ultrasound and mammogram. 

My whole body aches and I have been having pins and needles like feelings in my back for some time. I think the stress and anxiety is causing me to tense up which is naturally causing the aches and pains... our bodies react in strange ways to stress and worry. 

 sending lots of love and well wishes your way 

x

Hello Red888, sorry to hear about all this and the stress going with it . I was diagnosed in 2022 after finding it myself , mine was hormone  related too . I had all sorts of aches and pains ,and coming off HRT didn’t help. 
I know it’s easier said than done ,but try not to I think that everything is related to this . 
Have you got a Maggies near you ,where you can offload and have a chat too .

Treatment has greatly improved over the years too . 
I had mastectomies,chemo and now reconstructive surgery and feel good . Life will get back to normal xxx

Hi red

i am 42 have a 6 yr old and I was diagnosed the week before Christmas, grade 1 oestrogen positive as well, had a MRI last week and next week find out concrete plan. 

it’s so so hard, I had some days where I was a mess but kept hiding it from everyone. I came off HRT and my joints are killing me again, I need the results of my scan to feel better. I am overthinking all on aches and pains from the last 6 months or so. But juts gonna try and put it to the back of my mind and await the results. 

Hope you are o.k. You aren’t alone :) 

Hi Red,

A very warm welcome to our forum.

I am sorry to hear that you are in the unenviable position of waiting for final results still. This is always a worrying wait, but it is worth it, to get a clearer picture of what your care team are dealing with. Pain is seldom accompanied to breast cancer, which is usually painless. 

I had 2 bouts of breast cancer, within a year of one another. I had also lost my mum to secondary breast cancer, which had spread to her liver, lungs, bones and brain. I always thought that I would follow in her footsteps and that I was prepared for this. However, the reality was so much worse than I imagined. I was absolutely terrified, cried all the time and was a total mess. That was all 14 years ago and, with the benefit of hindsight, surgery and treatment was so much easier than I had expected. Mine was stage 1 and hormone positive too.

I have a lot of bone pain and have just had a CT, to be told that there is no cancer present. I sincerely hope that yours will be clear too. Don't worry about the crying - this is a good stress reliever. We all tend to over think things at this stage. You'll still be here for him for many years to come.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Bmartina

thank you for replying to me & sorry to hear of your diagnosis.

its terribly worrying & the waiting is also such a horrid time. I agree our bodies do act in weird ways with anxiety & stress. I was ill before the diagnosis so i think thats been playing on my mind.

i had my CT last week & get my results tmrw & hopefully will have more idea on my treatment plan. Fingers crossed. 

Do you have a treatment plan yet? Sending my positive thoughts to you xx

Hello Jolamine

thank you so much for replying to me.

im so sorry you have this illness & sorry to hear of your mum passing.

im so so glad to hear that you were treated & are still around to give people like me the courage & comfort to get through this.

my CT results are tmrw, so im a bit of a mess today. I think i will be much better after i understand what im facing.

thank you again, the support I’ve received here means so much right now.

sending my best wishes xx

Thank you so much for replying, hearing other peoples positive recovery is really making me feel more positive.

ive not heard of Maggies, I have a Macmillan centre at my hospital, i might pop in tmrw after my hospital appointment.

im so glad to hear your life is good after, sending best wishes to u xx

Hi Rooftile

i am so sorry to hear of your diagnosis at Christmas, it sounds similar to me in that we both have a young child.

have you had your results yet? I wonder why yours was an MRI & mine a CT?

im sending you super positive thoughts & hope you are ok, xxx

Hi Red,

You'll be glad that your wait for results is nearly over. I shall be thinking of you tomorrow and hope that nothing untoward has been found. You will feel better once you know exactly what your'e dealing with. If there had been any further spread, I would have expected more of your lymph nodes to be affected, so I'm keeping my fingers crossed for you, that this is not the case.

The Macmillan centre at the hospital is a great place for advice and help on all sorts of practical matters. Maggies does offer help and guidance too, but is more there for support. They also offer various alternative therapies and counselling. There are a number of cancer centres around, if you don't have a Maggies near to you. Ask about these at the Macmillan centre, at your GP's surgery, at the hospital or at your local library.  All offer a friendly ear and a chat, although the names vary and the services offered, can vary from one centre to another. 

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx