Making decisions granulosa cell tumour - to have a hysterectomy or not

I have recently been diagnosed with a rare type of ovarian cancer - granulosa cell cancer. I am 32 and have no children. 

This was diagnosed following surgery to remove a large cyst from my ovary. The biopsies from the omentum and womb that they took at the same time are normal, although the cyst burst during removal - the consultant is working on a basis that the cancer is stage 1C at the moment.

I have been told that the standard treatment is total hysterectomy, along with removal of omentum and various lymph nodes to get a full staging and to reduce chance of return etc.

However, the consultant also said that as I am young to be diagnosed with this, I could opt for just removal of the affected ovary and then be monitored closely.

I appreciate this is an unusual situation, but wondered whether anyone has had a similar situation, where you've had to decide whether to go conservative or more radical with surgery.- how did you make that decision?

Also interested in anyone who has experience of surgical menopause at a similar age (they have said I would not be able to have HRT as the tumour is oestrogen receptive). 

It feels like such a big decision - either major surgery and loss of fertility, or the risk of not completely removing the cancer! 

Thanks in advance 

Sunflowergirl123 x 

Parents
  • Hi sunflower girl did you go ahead with radical hysterectomy i have been diagnosed and this advice has been given to me I am going ahead with it but I am looking to see how you was if you had the surgery and like you I have been told no hrt and this is worrying me how I will cope im 40 

Reply
  • Hi sunflower girl did you go ahead with radical hysterectomy i have been diagnosed and this advice has been given to me I am going ahead with it but I am looking to see how you was if you had the surgery and like you I have been told no hrt and this is worrying me how I will cope im 40 

Children
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