Hi
I have just been diagnosed with invasive ductal cancer, which as spread outside of the ducts, but looks to be contained in the bust. No cancer is showing in the lymph nodes and CT scan looks clear. However, I initially saw a specialist in September 2022 who said the lump was prominent tissue and nothing to worry about. I went back to my GP in October 2023 and she referred me again. The 1st biopsy was clear, but the 2nd biopsy (taken a week later) and subsequent MRI scan showed a BIG 6 x 4 x 2 cm malignant tumor, which is tethered to the skin. So an implant is not a viable option for reconstruction as this is most of my 38C bust!.
I have started letrozole hormone therapy as the cancer is estrogen receptive and have been referred for a mastectomy with immediate diep flap reconstruction. However, I need further biopsies for an onco type dx test (my biopsy was insufficient) before a treatment plan is finalized. I know different areas of the country will vary, but just wondered how long others have waited for a mastectomy with immediate reconstruction, has it been weeks or months? There just seems so many things to think about and I feel like a ticking time bomb, part of me thinks to just have the mastectomy and get rid of the cancer asap with a delayed reconstruction. Then another part of me is saying not to panic and rush into a decision I may regret for the sake of a few weeks.
I have an appointment with the surgeon in 2 weeks time and the results of the onco type dx test should be back by then. I am sure they will make their recommendations then (and offer more info on time scale) and I know they are the experts. I just wondered if anyone had any advice or could share their own experience and decisions. As the saying goes "hindsight is a wonderful thing" and right now I wish I had a crystal ball.
Thank you for taking the time to read this and I wish you well in your own journey xx
