Follicular variant Papillary carcinoma- thyroid cancer

Hey people.

For the past year been going through few health issues and after being diagnosed with graves disease on 29th November last year to having a sore throat on 23rd December and in January feeling a lump on my left side neck which was a 1.8 thyroid nodule and after 2 urgent biopsies which first said Thy3a and 2nd said a Thy3f, surgeon on 10th August decided to remove whole thyroid which wasn't too bad tbh, never stopped me eating anything throat was sore for few days and just needed to take care not to stretch my neck. Anyway after waiting over 6 weeks for them to biopsy the thyroid, rang last Thursday to be told they were back, my thyroid nurse rang on Friday but wouldn't tell me anything, again Monday but wanted me to meet with surgeon, I met with him on Thursday on the hospital ward he was working that day to be told it was follicular variant of Papillary carcinoma.

Got to wait on MDT meeting this Friday so oncologist and pathologist can discuss if to give me Radio iodine ablation as Pathology reported it was close to a vessel which mean chance cells could have escaped.

Took blood test while there as when I had surgery I felt really good, tiredness reduced, palpitations gone however I've started feeling tired again and last week palpitations started again not as frequent but here.

Since last September it started with a pain in my side that prompted blood tests that caught the graves disease which I still have, in this time I've been told I have PCOS and investigating a bowel issue. Everything is soooo slow these days but thankfully my thyroid was removed and hopefully all cancer is too.

This has been a very frustrating process especially with all waiting lists and investigations taking so long but fingers crossed it doesn't return or cause anymore issue.

Thanks :) 

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  • Hello Trinitytrace

    I'm sorry to hear about all that you've been dealing with over the past year. It's understandable that you may have questions and concerns about things, particularly whilst you're now waiting for news from the MDT about possible further treatment. 

    We have lots of information available on our website about thyroid cancer that you might find of help but I also wonder if you might find it beneficial to chat things through with one of our team of nurses. I know they will be happy to offer any advice, information, and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that you don't have to wait too long for some news and that the team is able to give you some reassurance. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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