Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

  • Hi Mary its so lovely to hear from you , it seems like a life time away from when I first saw your posts but I'm really glad I was able to follow your story from beginning to end ,its strange how you just click with some people and realise you would like to know how certain people get on and keep wishing  them the best and after all the waiting and ups and downs you ended up with the Top Surgeon in the Country and he did you and himself proud ,I'm so glad it was a good outcome for you despite the long long recovery and I hope you are still getting stronger every week Mary and are able to do a few more things by now ,keep pushing ahead and I hope you stay as well as you possibly can ,take care Best Wishes and please stay in touch I love hearing you are doing well x

  • Hi Mary,

    You are always in my thoughts. I know just how difficult it is to keep up with your mail, when you're not feeling 100%, which is why I try not to pester you too often.

    You have had a long and difficult journey, but It sounds as if you are recuperating well. I am delighted to hear that you are managing to do some gentle gardening, but do be careful not to overdo things!

    Please continue to keep in touch and remember that I am always here for you.

    Kind regards,

    Jolamine xx

  • Thank you. Yes, I am so, so lucky that I was referred to that top surgeon. I had my routine blood test today, for my one kidney. The poor nurse couldn't get enough blood and had to have a try in three different places!
    I tire more than I realise I will, then rest until I feel like standing up again :-)

  • Thank you. I try to listen to my body and not overdo things, but my body doesn't always tell me when it's had enough! I think I am being more sensible and not trying to jump before I can walk.

    I planted two little white geraniums the other day, ones that Chris had grown in the greenhouse. That was enough. There are five more to be planted, in due course. One day at a time.

  • Hi Mary,

    You sound like I was - desperate to do things, but I’m glad to hear that you are listening to your body - or at least trying to! 

    It’s always a joy to plant flowers which have been home grown and I’m sure that you will both enjoy the end result. Your geraniums should thrive in this good weather. As for the other five plants - tomorrow is another day. 

    l’m glad to hear that the nurse eventually found some blood and hope that the results are good. I have to have all of my bloods taken from my foot, as a result of my bilateral lymphoedema. It’s unusual for the nurses to get any blood until they’ve had 4 or 5 attempts - I’ve even had to return on another day, when they’ve failed to get any blood at all the first time - it can be a sore and frustrating experience!

    Kind regards,

    Jolamine xx

  • Hi yes quite remarkable the way it turned out ,it had to be, if there hadn't been delays you might have gotten someone else but its great to know you're enjoying life and planting flowers in this lovely weather,  the way the months are going it will be Christmas before we know it ( groans ) lol  ,here's hoping your blood test is good I'm sure it will be , as Jolamine says enjoy the little things but rest when you have to onwards and upwards for us all  take good care Mary will speak soon no doubt x

  • I did just a little, little weeding today. Then stopped. It's lovely weather this week. Hope you are okay?

  • Christmas this year will be so different for me! Lovely sunshine today.

    I posted again here, in a way, to let people know I am still here and, perhaps, to give people hope.

  • Hello Mary its lovely to hear from you again and that you are already looking forward to Christmas ,mind you this year has gone so fast it'll be here before we know it ,it sounds like you are enjoying the lovely sunshine we are abroad at the minute getting some sunshine ,you can't beat it for making you feel great ,its really thoughtful to keep posting how well your recovery is going considering what you went through ,like you say it does give people hope when they read peoples stories ,I see you posted a little message for  Jolamine as well ,no doubt she'll see it soon, anyway Mary its lovely to speak to you keep going with the improvements every day and we'll speak again soon xx

  • Hi Mary,

    It is truly heartening to hear that your recovery is still going well and I have no doubt at all, that your story is uplifting for many, so please do keep posting when you can. It was indeed a lovely day today and there was quite a warmth in the sun. I hope that you managed to stop your weeding, before you exhausted yourself this time? We are looking forward to celebrating our golden wedding at the beginning of next month, so I am selfishly hoping that the better weather will stay with us until then.

    What do you normally do for Christmas? With moving house and my husband's recent skin cancer diagnosis, our Christmas will be very different this year too. Still, all we can do is to make the most of it!

    I am doing fine thank you, not so able to get around now, but I still manage with the aid of a mobility scooter. I want to hold on to my independence at all costs!

    Take care.

    Jolamine xx