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DS-
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OMG.

 Im so glad iv read these posts....Explains so much of how im feeling.........Iv  only had surgery (Lumpectomy) in March. of which I coped with really positively ....    been  put on Letrozole.       Iv  been sooo unwell. Im thinking im going off my head....My body is in agony, feel like iv been kicked by a horse everyday,,,  the sweats,..   breathlessness,..   swollen sore  ankles n legs,..  fatigue.... obviously it effects your mood also.  but I now don't feel alone.   MY hospital app is November. hopefully get something changed.      can't feel like this for 5 yrs...

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    Hello  Ds ,sorry to hear you are feeling so rough. I had double mastectomies in September 22 , followed by Chemo til March . I have been on Letrezole since then and should be on them for 10 years ! Some days are better than others ,have sweats but taking Vencarm now that’s helping . Achy joints and muscles some days too but seem to be improving , Have a word with your Gp ,I think there are alternatives .You don’t need to suffer like this .Let me know how things go xxx

  • Offline in reply to rumpelstiltskin

    Thanku so much for your reply.   iv called my cancer nurse. she is gonna try me with different brand.   but I will certainly ask her abt Vencarm..  iv  been a very positive person all my life  but this fair knocks you for six ..    hopefully I get it sorted soon.     can't go thru life feeling like this everyday xxx

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    Ds 

    km

    on tamoxifen hood and bad but overall ok 

    soeak to GP lovely surely they can give you something to ease the side effects xx good luck x 

  • Offline in reply to laraj

    DS I feel your pain ! Have been on this poison for 6 months and have had every side effect listed . I take the following but please check with your doctor first.

    I have been prescribed Citalopram for hot flushes

    I take magnesium 150mgs twice daily (Lamberts) this helps with the joint/ bone pain .

    I take Calcium &. Vit D at lunchtime ( cannot be taken at same time as Magnesium) 

    I take Vit B12 for hair & nails 

    If nothing else please try Magnesium it’s really effective for muscle /bone pain 

    Good luck ! 

  • Offline in reply to LCR

    As LCR stated ,the Citalopren helps as well ,I take that too as well as Magnesium and Glcosamine .it’s trial and error as well I think .Always take my Vit D and Selenium too 

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