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Upper Tract Urothelial Carcinoma UTUC

Virkie
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Anyone have any information on UTUC? Especially when has spread to lymph nodes.Counted as one of the rarer cancers. There’s info available on treatment but no advice anywhere if treatment not appropriate. Outcomes not good even with treatment. Little research done over last 20 to 30 years. No money in it as one of the rarer cancers.

  • Hello Virkie

    There's some information available about UTUC on the Macmillan website which I've linked for you here. You might also want to consider giving our team of nurses a call. I'm sure they would be happy to offer any advice and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    It can be incredibly frustrating when trying to find information about rare cancers. You might find it helpful to have a look at this page on our website. I do hope you're able to connect with someone who has experience with this diagnosis. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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