Diagnosed with triple negative breast cancer

Hi.

I have recently been diagnosed with triple negative breast cancer and am about to embark on a fairly aggressive chemo/immunotherapy treatment plan.  Although the consultant I met with yesterday was lovely, it was a bit doomsday with all the possible side effects.  I'd love to chat with anyone who's been through anything similar?  Current plan is 12 weeks of weekly chemo/immunotherapy sessions followed by sessions every 3 weeks for a further 12 weeks.  All support gratefully received. 

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  • Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

  • Hi Lebell,

    I'm so sorry to hear of your diagnosis.  Your treatment sounds very similar to mine.  Like you, I'm also dreading the chemo and thought it would be a last resort too when I got the diagnosis.  Unfortunately it seems mine is more aggressive than they originally thought, hence the aggressive chemo regime.  

    I've just booked my wig consultation and have ordered a pretty turban.  If you haven't done so already, please reach out to Macmillan, they have been amazing with me and have put some of my fears, not totally to rest, but reassured.  

    Good luck with the MRI.  If you are claustrophobic at all, please speak to your GP about getting a mild sedative to take on the day.  I wish I had known about it before mine!  The staff are amazing though and will put you at your ease and are extremely patient (they had to be with me lol).  

    I'm doing ok today, just trying to take it one day at a time.  What is the insert for if you don't mind me asking?  Is it the PIC line?  I have my pre-assessment appointment on Thursday (12th) and I suspect they will mention that for me too. 

    We can support each other through this.  My chemo starts on the 19th, so lets keep in touch and hold each others hands. xx

  • Hi,

    I was due to have surgery to remove the lump first, they got me in early (as I was due to go on holiday, now in Lanzerote ) but once they got the receptor results back they changed it to chemo first.

    can I ask where you had your wig consultation? Was it through the NHS or Macmillan? 

    I should be ok small spaces don’t tend to bother me too much, or at least they don’t usually haha.

    yes sorry I couldn’t remember what they called it, it’s the insert/pic line that they put the chemo through, I have another consultation with my oncologist on 16th and hoping I’ll have my chemo start date then.

    it will be good to go through it with somebody going through the same, it would be nice to be able to support each other xx

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  • Hi,

    I was due to have surgery to remove the lump first, they got me in early (as I was due to go on holiday, now in Lanzerote ) but once they got the receptor results back they changed it to chemo first.

    can I ask where you had your wig consultation? Was it through the NHS or Macmillan? 

    I should be ok small spaces don’t tend to bother me too much, or at least they don’t usually haha.

    yes sorry I couldn’t remember what they called it, it’s the insert/pic line that they put the chemo through, I have another consultation with my oncologist on 16th and hoping I’ll have my chemo start date then.

    it will be good to go through it with somebody going through the same, it would be nice to be able to support each other xx

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