Vestibular Schwannoma - Right inferior vestibular nerve

Hello

I have been diagnosed incidentally with a right VS it is on my inferior vestibular nerve less than 2mm and been there for the last 10 years (now 33). No changes since then at all. no other schwanomma or lesion except my VHL condition.

Could I be having NF2?

Thank you

  • Hello Feroz, 

    I hope that you will hear from other members of our community who have also been diagnosed with a vestibular schwannoma and thought I would share with you the information on our website on vestibular schwannomas. Perhaps you could ask your medical team/GP whether you could be having NF2 - this is something they will be able to tell you more about or they will be able to explain things in more detail for you. 

    Our nurses are also available on this free number 0808 800 4040 if you would like to talk things through with them. Their helpline is open Monday to Friday from 9am to 5pm so don't hesitate to give them a call at any time if you have any questions.

    Hopefully others who have had a similar experience will be along shortly and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator