Hey all,

My dad - a wonderful man - started losing weight last year, noticably. He had scans in March and we were told all fine! Everything great!

Everything was not great. They missed cancer in his kidneys, that has now spread to his lungs and is in his lymph. It's not clear where things went wrong, but there is a focus on NHS management missing something.

Since then, every day has been a battle with the NHS. Calling up constantly to get his scans in, his biopsies in, being told that we "have to just wait" and "a few weeks isn't a long time in the grand scheme of things" after they allowed his cancer to spread for 6 months. 

I get it's not a great diagnosis, but we're trying to focus on the positives. 

I'm doing a diet overhaul for him, seeing how he can keep active etc. 

He'll hopefully be doing immunotherapy soon.

I would really appreciate advice on:

1) what others are doing to help aid their response to treatment? Just in case I'm missing anything

2) If anyone knows of advanced treatments elsewhere from their research for kidney cancer

3) How people generally react to immunotherapy

4) If anyone has had a late stage diagnosis and managed to live with it and manage it for a period of several years?

Thank you all, sorry we all find ourselves on this site. x