I had no symptoms, I went for a routine mammogram at 49, called back to hospital after 4 days, where i underwent more mammograms and needle biopsy.
Then two week wait to be told i had what they considered to be AIDEP, they said they needed another vacuum biopsy. This was even more painful and large. I waited another 2 weeks to be told this was also AIDEP, which they graded as DCIS as there was a mass of 8.5cm, they said i should have a mastectomy, they then referred me to another hospital. Who saw me within 2 weeks and operated within 3, i had a mastectomy with reconstruction from my thighs, i still can't walk properly and am in a lot of pain with my right leg in the night, i can't feel from my the top of my leg at the back to just above my knee, completely numb, my breast is hard and painful at the top. My life stopped, my children are only 12 and 8. I went for results to be told,' you didn't need it done, we found 2mm of low grade dcis, we could have watched and waited, but we didn't know what we were going to find'!
My life is a mess, i can't function, look after my kids, i've put my son in a kids club for the whole summer and my i can't to activities with my daughter. She's had friends over but i can't seem to interact, get back to me. I'm devastated, i don't want my husband to see me naked, if it wasn't for the kids i'd just want to die. I don't know how to get back, my life was great before, i'd given up teaching, had a few odd jobs, i was so happy. I just feel so torn apart and butchered.
Anyone been through similar? I don't know what to do next, feel i should get lawyers involved but just don't have the energy.
