Hi!

I've just joined as I've just been diagnosed with dcis.

About 18 months - 2 years ago I thought things felt wrong but no lumps, the GP reluctantly sent me for a mamogram which showed nothing. Then I got a discharge from my nipple, GP referred me and the consultant did another mamogram and said nothing to see but come back if it gets worse. Six months later it bled again so I went back again but still nothing on mamogram.

I saw another consultant who did yet another mamogram and biopsies, still nothing. Then he sent me for a MRI scan and it's DCIS but now so widespread I need a mastectomy! Anyone else have this sort of problem? What's the point of a mamogram? Is this normal for this sort of disease?

I've now had further biopsies which show it's still ductal and no sign of it having spread beyond the ducts yet but if I wanted an immediate reconstruction the surgery, including the mastectomy, would be delayed until there's a plastics person available, which will be several months away. Given the rate it appears to have developed I don't want to wait for the mastectomy. However, they say it will be well over a year for delayed reconstruction and this wait seems to get longer every time I ask about it. Has anyone had delayed diep reconstruction? Are there any age related restrictions for diep? Just about to have surgery and not sure what to do. 

X J