Hi, I started my cancer journey 6 weeks ago and in this time I have gone from consultation to biopsy to MRI to diagnosis to partial removal of my tongue last week. I have my CT on Monday and then on 7th I will get my results to see if it is aggressive and will I need further treatment.
Probably happened all so fast because I have an autoimmune disease since the age of 17 (I'm 51 now) and 7 other connective tissue disorders that I have collected over time and on constant immunosuppressive medication (prednisolone and azathioprine for 34 years). So I'm not a stranger to ill health or hospital.
But I am wondering how long it may have taken others to master the art of speaking and eating solids properly again. I only weighed a little over 7 and half stone to start and have lost 4Ibs in a week.
I am eating (was determined to just to be discharged!). Though it's a mush diet and can speak in a fashion but if I had some kind of milestone in my head I would feel like I had a goal post. I also need to return to work at some point as I feel a bit like a fraud to be honest like I'm taking liberties being on sick leave.
I haven't had the whole tongue removed so there was no need for reconstruction.
Any ideas, obviously I realise everyone's recovery is very different and I don't know at this point if we got it all or if I'm going to need more treatment.
Thanks :) x