Im struggling to let my dads cancer diagnosis sink in

Hello 

Ive been going over whether to post anything for the past few hours as I feel I haven't properly let anything sink in but I feel im driving myself mad and I feel so selfish for it. And im so sorry it's so long. 

Yesterday my dad got diagnosed with Lung cancer. Hes 74. Hes always been old school, didnt really want to bother doctors and got over any illnesses himself (he very rarely gets ill). My dad was in the army for years and smoked (please dont judge, he tried stopping but just couldn't, all he was able to do was reduce how much he smoked a day which for him was a big achievement). The Past few months he had chest infections on and off and despite him telling his GP that he feels it was something more than just a chest infection, he was told thats all it was and sent on his way with antibiotics until one day he put his foot down and asked them to look into why these "infections" kept coming back and they finally listened. (this was on top of breathlessness, lack of sleep and counting up small bits of blood). He was so convinced he had COPD. 

These past few weeks my dad has had X-rays, ct scans, many blood samples etc where they found that his right lung was collapsed and full of Mucus but additionally found a shadow but due to the poor funcition, they required a Bronchoscopy which he had done. 
He got the call friday that his consultant wanted to see him Monday (yesterday) where he was diagnosed with Lung cancer.

Now this is where I feel so frustrated but no fault of anyone. My dad has been given a diagnosis of Lung cancer however we are left in the dark at the moment as we haven't been given a stage. He has to go for a brain scan which they've said could be up to 2 weeks which im unsure the reason why but feel it just for more bad news. 

I feel we all have so many questions which we wont have answers too but my dad hasn't been given any treatment options until they do the scan and he knows the stage (although he said he dont want to do any treatment because hes "lived his life" which I understand but selfish for feeling upset that he possibly wont reconsider).

My mum and 2 sisters seem to have taken the news quite well although I cant say for sure as I dont know what goes on behind closed doors but they had a feeling what it was for a while as they are all senior carers in a nursing home whilst has end of life care so they said had a feeling of what it was and whats to come but I feel like ive honestly forgotten how to function and feel a little lost.

Im a daddy girl and really close to my dad although I dont see him as much as id like too but he used to always be working when I off work etc so when we do see each other its special. I have 3 children who's 6 and under so I know my focus has to be on them which they are keeping me going at the moment but I find myself okay one minute then bursting into tears the next. You hear of this happening all the time and my heart always breaks for those families and those with any diagnosis but you always think it would never happen to you. I cant shake that its just going to go so quickly and the next he wont be here and im not ready to lose him (I do have anxiety so I do jump to worse case scenarios which dont help)
I haven't been able to speak to my dad yet as my mum said hes not ready to talk about it and to be honest hes never liked any fuss and never will like fuss so I feel thats just contributing to the shock of it and that ill never get a chance to talk about it to him. Hes always been so laid back with everything on life and has the view of that everything happens for a reason and hes said at the beginning of the tests that if its bad news he accepts it as hes recently retired and lived his life.

I guess what im asking is, is the brain scan routine before getting a stage or what exactly does that mean? 
or just any help and advice on how I can speak to my dad when he is ready and how do I cope and handle whilst still functioning being a mum.

im really sorry its long and if its stupid or if it comes across that im rambling. 

  • Hi.

    Yes it's normal to have a brain scan as part of the tests.

    I have lung cancer: tests to diagnose then stage and grade were

    Chest xray, ct scan, brain scan, pet scan, ebus, ct guided biopsy. My final stage and grade came after lobectomy ( removal of lung lobe, tumor and lymph nodes ). There are many tests and much time can elapse before you can get a full stage and grade.

    Very best wishes, love and hugs coming out to you.

    Xx

  • Sorry, forgot i also had a set of lung function tests and various other basic test to check my fitness for surgery 

    Xx

  • Hello

    Sorry it's taken a couple days to reply back to you, still trying to get my head round things. 

    First of all, im so so sorry for your diagnosis, Massive best wishes and love to you. If you ever need to talk, please im only a message away, I know thats probably a but strange coming from a complete stranger but if I can be any comfort or help in anyway, even just to let things off your chest then im more than happy to help. 

    thank you for answering, that really does mean a lot to me. It just seemed all confusing. you hear of this happening but you never realise how much goes Into diagnosing etc. 
    My dad went yesterday for a lung function test (he already had one in the early stages of test) and hes still awaiting on appointments on other tests/scans. 

    He was told that surgery wasn't an option for him. He has told my mum that he dont want any treatments and just wants to be left alone to "Die"

    This is going to get harder which I guess is natural, but hes been complaining of back pain so I just dont know what to do nor say (he isnt wanting to speak to anyone yet)

    but thank you so much again for commenting, it really does mean alot and again, im only ever a message away. 

    best wishes and big hugs xxx

  • Hi.

    Thanks for your lovely message.

    Sorry to hear your dad's in operable, there is more than one type of lung cancer small cell often written up as (sclc) and non small cell (nsclc) which in itself has 3 different types.

    I have no medical training at all, there is excellent information on different types both on this site and Macmillan.

    It is very in depth the amount of tests that need to be done in order to achieve stage and grade, each of the results forms a part of the whole picture. Many people believe you get a stage and grade straight away, i myself did to be honest.

    I've had lobectomy chemotherapy and immunotherapy for nsclc, ardenocarcinoma, don't hesitate to ask if you have any questions assuming your dad has nsclc and is offered any of these treatments, i appreciate at this point in time he says he dosen't want any treatment,  but if he's suitable for them and they can help he might change his mind in time.

    It's a tough time for the family and the patient. I can tell you that first hand, my husband passed away from cancer in 2011 although not lung cancer so i get how you feel as the care giver / family and i get how he feels in not wanting to talk about it at the moment as the patient too.

    Keep your chin up, if you need a shoulder i have two.

    Xx