Bowel screening, colonoscopy etc

I have just "failed" standard mass screening test (last one I would be eligible for at 74 i think) and have been offered a screening appointment and then probably a colonoscopy.

My previous colonoscopy was 4.5 years ago and "normal", not even any polyps. I do not score against any risk factors, except radiotherapy of the prostate 2 years ago, which seems to have gone well other than for late effects to my bowel movements. This makes for symptoms which could be bowel cancer. 

I am undecided about undergoing investigations. I would be unlikely to accept any treatment, but should I KNOW and adjust my life accordingly? 

Letter re "screening practitioner appointment" received at a weekend immediately before I go on holiday and I will not be in UK on date I have been given. I shall try to phone from overseas ASAP, but what shall I say?

Sorry, bit rambling, but it was unexpected and bad timing and has upset me more than prostate cancer diagnosis did.

Any and all comments, kind or harsh, welcome.

Thanks, dj.

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  • I would definitely attend ,I would reschedule for after your holiday ,chances are its nothing to worry about but if it is wouldn't you rather know ,If you just ignore it you will be forever thinking about it ,it will not go away so I would advise you to make another appointment at your convenience .

  • Oh yes. I did speak at length about re-scheduling and they did come up with one the day after I arrive home. Just that by phone and I am not sure how that will work!

  • Pre-colonoscopy assessment by phone yesterday, so only lost 4 days from the schedule because of being on holiday. Blood test bit arranged for Monday, procedure for 19 July if I am in acceptable condition! 

    Although FIT result says only "abnormal", the assessment nurse made some comment about referring at "120". If I understand that correctly then cancer pretty much certain. I shall however undergo the colonoscopy if on offer. Any treatment a different matter.

    I do have confirmatory symptoms, but also 2 other conditions which could present the same, so maybe gives a probability of not C of 10%.

    Whatever, I prefer to know. Doubt I will sleep well next 13 nights.....

  • Well done in getting quite a few things sorted ,you say with a score of 120 cancer is pretty much certain I would say its not certain at all ,people have had a high score of many hundreds and it has not been cancer ,it could be internal piles or polyp's  or diverticulitis etc its not always something as serious as cancer .

  • Cancer is definitely not certain or even likely because of a raised FIT test. I think the odds of cancer when one is referred because of a positive FIT test is around 10%. 

    I guess depending on the other symptoms, they could make the odds a little higher, but I would think the odds are still very much on the side of it not being cancer.

    All the FIT test tells you is that there was blood in your stool and lots of things can cause that.

  • Thanks both for the encouraging words. I know the figures, but as I read the stats the 10% relates only to referrals following a random screening programme finding, as in my case.

    Referrals resulting from symptoms have a higher %age C finding. And I have those symptoms in spades! They have been "ignored" because can be a result of the prostate ERT I received 2 years ago. And ERT can also actually cause C! 

    Having had a clear colonoscopy 4.5 years ago and pelvic MRI 2 years ago which didn't flag bowel issues obviously a plus. But long term symptoms remain a large negative.

    A confusing set of data to analyse, but overall I conclude the risk/probability remains high.

    Time will tell...!

  • Offline in reply to dj48 Unpublished Reply

    Delete 3rd part-paragraph above!

  • A good day (apart from Plenvu and hunger!). Colonoscpy, without any sedation, found no polyps and no cancer. Did find scarring from prostate radiotherapy, which Consultant considered the source of blood found in FIT test. It was quite visibly obvious on the screen.

    No further action (at my age!).

    Thanks for optimism-boost!

  • Hi i'm so pleased to hear your good news ,you can relax and get on with life now ,have a great future  we're always here if for any reason you might want to pop back in for a chat ,Best Wishes Jenny .

  • Delighted to hear no cancer was found.

  • My thanks. Last scheduled hormone injection post-prostate radiotherapy tomorrow  -  busy week!

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