Really struggling breast cancer

Hello

I have just had a mastectomy and reconstruction after being diagnosed with a 1.95cm tumour. It is invasive ductal, estrogen positive, progesterone positive, HER negative, Ki67 8%.

I was offered a lumpectomy but went for a mastectomy. I also had 2 lymph nodes removed for biopsy. My lymph nodes were normal at ultrasound. I also paid for a pet ct scan as I have massive anxiety and was worried my cancer had spread. The pet scan showed the cancer was only in my breast. After the operation my consultant told me all went well and my lymph nodes looked OK, but must wait for the post op pathology.

I am in pieces. I can't eat, I am always worrying or crying. I have lost myself completely. GP is great and I have medication. I am so worried that the cancer has spread to my lymph nodes. I keep using nhs predict. I really feel that I can't live with the prospect of cancer cells being in my body.

I am constantly crying and my poor husband is encouraging me to be positive and to see how far I have come. I don't see it. I just feel like life is over. 

I an lonely. I don't know what to do. I am constantly googling searching for reassurance.

Will it get better? Is it just me who feels so bad? 

  • Hi Miska

    It's absolutely normal to feel like you do and I promise it does get better, it just takes time (I appreciate that isn't very helpful!) do you have access to any counselling through your hospital? Fortunately I did and I found it incredibly helpful. 

    Fingers crossed you don't have to wait too long for your follow up appointment and that you get good results. 

    xx

  • Miska 

    sorry you are struggling I have been where you are the waits for results are horrid, after my iperstions tge waits were in my 7 days for results I used private but those 7 days were like 7 months .

    good luck on your results hood you are recovering well 

    I promise you you will get back to your old self you won't believe how quickly your normal life comes back it seems like it never happened to me now you will. E the same 

    good luck love Lara Heart

  • So sorry to read your post MISKA. We get you. We understand. And, although I chose lumpectomy instead of masectomy, I know how you are feeling. You have had awful news, and a big operation, you are not yet recovered and you are in an unfamilar system which takes its time. 

    I have only got to today by just doing one day at a time. I keep telling myself it is temporary, that things will normalise again one day. Don't try to do too much, anything you do no matter how small is an achievement. And hopefully you will get your results soonish. Have they told you when your appointment is? I was in such a state that I actually made myself a chart and coloured in each day after the operation so I could physically see that I was getting closer to my results appointment.

    With love xx

  • Thanks for the reply.

    I am terrified I am going to die. I know I am over reacting as all doctors tell me I will be OK.

    I don't believe them. 

    I am terrified and so so sick of feeling this way. Dark thoughts keep coming and I don't know how much longer I can carry on.

    My appointment is probably the 9th June. I want my life back. I can't imagine feeling normal ever again. 

    Xx

  • Thanks Lara.

    I just keep reading different posts on here. I am a mess. I can't cope anymore.

    I want to be strong but I am so so scared. People say I have done the hard part with the operation and that I am now cancer free. My GP said I am cancer free.  Nothing showed on the PET CT scan, but that was now 4 weeks ago. I had my operation 2 weeks ago.

    Maybe it has spread since then. I don't know. I am not sure I can hold out another week for what I have convinced myself is gping to be even worse news.

    My mental health is shot 

     

    Xx

     

  • Oh, lovely, I am so sorry you are struggling. You really need to talk to someone. I suggest you give Macmillan a call - they are absolutely brilliant and I promise you'll feel better after talking to them. Their number is 0808 808 00 00 and the lines are open 8am-8pm every day. Big hug, Amy xx

  • [@MISKA123]‍ 

    you really are struggling bless you 

    just to reassure you all us ladies hete have been right where you are waiting for results the process is absolutely horrible but it's something we can't change unfortunately it's just the rollercoaster as I called it however you will soon be jumping off things do change you will look back and think how did I get through it but you do and you definitely will be back to your old self and a much stronger cookie for sure , the best thing for me at that time was going out everyday shopping lunch seeing a friend going walking I'd do anything just to get out drive miles to go to restaurants to pass time the worst thing to do is stay at the house try and get out as much as possible and see as many people as you possibly can .

    sending big hugs love Lara Heart

  • Helllo, I hope you are now feeling a little bit better. 
    mum realy struggling at the moment too. Perhaps we can help each other?