Hi Leanne.

I was diagnosed with breast cancer on April 17th and the HER2 result came back positive 5 weeks later. I'm also ER+ and PR+. Heading towards chemo myself, not sure when as yet, as I have to have a clip put in tomorrow and have a heart scan next Weds. After that, hopefully I'm good to go. I'm v scared about how I'm going to cope with the side effects, particularly with me suffering with M.E., but at the same time want it to get going now. Have been wobbly, doing a bit better at the moment. Trying to control the things I can control and accept the bits I can't control as best I can. Not easy when you're a bit of a control freak like myself!

Going to give the cold cap a go as I'm not relishing losing my hair (my Mum went through the same when I was 20 also for breast cancer and I find it quite triggering) I wanted to wish you all the best for tomorrow, hope it goes okay and it will be one of your rounds ticked off.

Good luck, take care.

Helen.

Hi there 

I'm HER posit and PR pos! 
In the day unit now with my cold cap and it's not near as bad as I expected! First 10 mins is a bit strange but fine now? This is so so daunting and I didn't know what to expect today but staff are living and making me feel as comfortable as ever! I feel so hopeful and positive today and realise that this is just the rubbish part......keep positive and don't let this get the better of ur head? I e been like u and had major wobbles but that's ok!!   Also got some diazepam from doctor and what a difference it makes!!  Speak to ur GP

take care and I'm always here xx

Leanne 

well done you are there just remember every treatment is making you better and everyday after is a fay closer to finish line you will smash it well done for cold capping too massive luck and love to you love Lara ️

Hi Leanne,

Well done to you, you're there and you're doing it. Hope it continued to go okay with the cold cap and the treatment doesn't knock you around too much. Every round is a round closer to getting it done, getting to the next stage of reatment. Also, it is making you better, so you can get to the other side of this. You've got this.

Thinking of you, take care.

Helen.

Hi everyone

First session and managed to cold cap! Not near as bad as I anticipated! I had it on even longer as my medication didn't come!! 
anyway last night was strange didn't feel great but also didn't feel terrible! The tiredness hit me but I just slept on and off, felt nauseous bit think it was the run up and heightened emotions then done!! 
Today felt a wee bit nauseous this morning, steroids etc taken and I'm getting ready for a bbq!! Feel better this afternoon since had a shower etc, wee bit tired but one down 7 to go!! Woohoo!!! 
happy Saturday everyone and enjoy the sun (even me with factor 50 on) lol xx

Hi Leanne,

Thank you for the update, have been thinking about you. Well done! So pleased to hear you coped with the cold cap and the side effects are manageable so far.

Have a good time at the BBQ and enjoy the sunshine. You deserve some chill time. One down, 7 to go, you're on your way to being cancer free and fully well again. 

Helen.xx

I completely empathise. I finished 12 rounds of chemo last month. My hair (dyed black!) has always been my security blanket. I chose not to cold cap as you can't dye it or use any heat on it and the thought of grey roots and naturally frizzy hair didn't appeal to me. I had my cut to a Bob in Oreo for chemo. Wishing 17 days of completing my first session I lost 50% and it became painful. So we shaved it and took control. It felt better. I got a lovely wig and wear head scarves when I feel like a don't want to wear a wig. 
Towards the end of chemo my eyes brows went then my lashes. After chemo, my nails went brown and now black, they are painful as are my toe nails and no doubt they'll fall off next. In all honestly my lashes, brows and nails have bothered me more than my hair. Didn't think I'd ever say that. 
 

wishing you well for your treatment darling xx

Hi Leanne. How are you doing? Just wanted to check in, see how you're faring now the chat forum is up and running again. I hope the first round continued to go okay and you didn't feel too poorly with the side effects.

Mt first round is booked infor Friday 9th June now. Feeling pretty scared and anxious. It's the unknown I guess, just don't know how I'll be with it all.

Take care,

Helen.

Hey Helen

im so sorry for not noticing this! I haven’t been on the site since my first session? Unsure why….. I think I was maybe trying to stay away from any negative stories etc! Being selfish I suppose!!

anyway how did u get on with ur session? I’ve had two now, managed cold cap twice but hair is shedding only a little! I do have wee bald patches above my ear as cold cap doesn’t reach there!  I struggled a bit after second session due to migraines so ended up in ward for the day but thankfully that’s passed!!  I really hope it’s not been too bad for urself!   

xxx

Hi Leanne,I’m also from Dundee and have to go to Aberdeen in 3 weeks time but treatment is in Dundee,diagnosed,4 weeks ago ,I was ok with diagnoses because I was prepared for it,but it is this waiting,my treatment was supposed to start 2 weeks ago,but now put back ,I was looking forward to my cruise for my special birthday in September,but now on hold xx