struggling big time - chemo due to start next friday

Hi all

i am due to commence chemo treatment Friday coming 2nd June and to say I am struggling is an understatement? Up until now I have been good, feeling positive and generally ready to kick start this journey but today is tough! Keep touching my hair and thinking this is my last weekend with hair (catastrophising obv) and generally scared of how I will feel!! Was reading my chemo prescription last night and my schedule one drug causes thinning of hair and the other total hair loss? This is my biggest worry! I am hoping to really persevere with the cold cap but wondering if I am wasting my time.   Head is racing today!! Anyone else feel like this in the run up to starting xx

  • Yes ur so right! My son said to me on Sunday following a meltdown that there is "no point if you won't be positive" he's so true' it's the only way to get thru this?

    i was diagnosed 10th April and only starting treatment Friday so it's been a while of me feeling so normal and well, then hits you like a ton of bricks! I also had to travel to Aberdeen (I'm Dundee) to see an oncologist! Ur so right the waiting is the worst! I don't want middle parts and ins and outs? I'm like u just want started and know what's happening! 
    im every 3rd Friday for treatment, 4 of EC and then god knows what the other 4 are? I can't seem to take it all in! 
    my son is away on a boys holiday tomorrow and I'm dreading him not being here.....he keeps me positive and keeps the house it's usual mad self! 
     

    Really hope ur ok.....just a chapter that we need to get thru to get on to us living our best lives.....(I'll defo be booking a girls holiday after this lol) xxx

  • Yess I had EC for 4 then taxol for 4 ! I found EC tougher but yet still not horrendous! I'd tend to be unwell / feeling the side effects for around 5 days and then pick up again.

    Its an awful lot to take in ... be kind to yourself. Just one step/ day at a time. 

    I'm okay thank you! 

    Ohhh now a holiday sounds perfect! 

    I'll be thinking of you Friday! But you've got this ! Xxx

  • Leanne 

    yes I hear what you are saying about appointments when you are there you are like why me I shouldn't be here this is not happening it's a horrible experience but you do get through it somehow and when it's over you are a stronger person for sure , I never ever now say no to anything any night out any lunch any holiday it taught me to live each day like it's your last it's a mindset 

    big hugs good luck for Friday you will smash it x

    love Lara Heart

  • I had long hair and loved it . So know how you feel 

    However.... I look at it as a small price to pay for getting the treatment . You will get thou this , lots & lots of support out there and once treatments starts you will get chatting with other folks in the same boat as you 

    Big hug x

  • You will also get info on " look good feel better" workshops

    I went on one at my cancer centre. You get loads of tips on hair loss, drawing on eyes brows etc plus we all got a gorgeous goody bag full of fantastic make up products.

    They also hold well been sessions like yoga and meditation 

    Check it out when you can. You will meet ladies who feel just like you do Heart

  • Hi Leanne,

    Sorry to hear you've been struggling, I was diagnosed with breast cancer in January, and I'm about to have my 4th chemo next week, I've had EC chemo, I was so worried before I started, and like you really struggled with the thought of all the side effects, especially my hair, I'm a hairdresser and I kept thinking I'm only 39 I can't have no hair!!! 

    But it's been ok, I'm tired for about 5 days after the chemo then I start to pick back up again, just listen to your body and if your tired then rest. I was told to drink lots of water before, during and after chemo, and I really think that helps.

    As for loosing my hair it's been hard, but does get easier, I can't get on with wigs they feel too heavy and hot on my head, so I tend to wear the turbans.

    It does get better, once treatment starts you have something to focus on.

    Hope Friday goes well, feel free to msg whenever you like

    Good luck 

    Linz xx

  • Hi Linz 

    Thanks for your response? Did you cold cap? I'm going to try but not holding out hope!! 
    They said to use baby shampoo but I'm reading that it's too alkaline so I shouldn't? I'm not sure what of shampoo to use for going thru the chemo

     

    It's all so surreal isn't it? I've bought a few silk scarves so hopefully if I do lose my hair I will suit them! I've ordered a wig but like u the thought of it being hot isn't appealing!! 

    this is just a rubbish chapter we are going thru in life! Will make us stronger people!!  Thanks again for commenting I appreciate all the replies

    Im under no illusion it's gonna be tough but us women are tough!! Hope you are ok xx

  • The cold cap worked for my wife, but she did end up losing her hair as she found the cold cap added too much time onto her appointment. Even when she lost her hair, she didn't lose it all, and that's something she put down to the cold cap.

    Wigs, she found them way too itchy, and like yourself, she went through treatment during a summer which compounded those issues. She ended up just wearing a head scarf come hat sort of thing.

    No idea if the hospital has mentioned this, but they usually advise you to take paracetamol an hour beforehand as they can give you a headache. Taking it before the event tends to work better than taking it after or just as you put the cap on.

  • Leanne 

    My auntie going through chemo a few years ago had a baseball hat with hair attached also which she found amazing the hat inside was a normal hat and the hair was just attached to the side so no itchy from wigs as such also she had Bob ones and ponytail ones from amazon really cheap too x 

  • No I didn't try the cold cap. I was told I would have to be in there longer and I didn't want that.

    You'll smash it I know you will 

    Xxx