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struggling big time - chemo due to start next friday

Leanne1202
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Hi all

i am due to commence chemo treatment Friday coming 2nd June and to say I am struggling is an understatement? Up until now I have been good, feeling positive and generally ready to kick start this journey but today is tough! Keep touching my hair and thinking this is my last weekend with hair (catastrophising obv) and generally scared of how I will feel!! Was reading my chemo prescription last night and my schedule one drug causes thinning of hair and the other total hair loss? This is my biggest worry! I am hoping to really persevere with the cold cap but wondering if I am wasting my time.   Head is racing today!! Anyone else feel like this in the run up to starting xx

  • Offline in reply to Zanndra

    Hi there,

    I went up but wish I didn’t as thought it was a waste of time! Could have told me over the phone but I suppose it’s nice to put faces to names!!! 

    That would have been quick for ur treatment starting 2 weeks after diagnosis! I was April diagnosed and didn’t start until June? Are u starting off with chemo? 

    you can still have ur special cruise just delayed! U can have two birthdays lol?! I was supposed to be away in September as well for my dad birthday but have to wait!  I might see u up in at the unit xxx

  • Offline in reply to Leanne1202

    Hi Leanne ,yes I have to see the consultant told me he was going to give me Letrozole for 4 months but then cancelled it as I was leaving saying something else has come up,got phone call 3 days later to say that I would benefit from chemo,and just to cancel Letrozole and an appt would be made for me in Aberdeen,got letter this morning saying Her2 is positive and not borderline as first thought,don’t know if I’m getting tablets or treatment through veins,wants tumour to shrink then I will get chemo,yes maybe I’ll see you ,take care,xx

  • Offline in reply to Zanndra

    Same as me!! Although lucky u u have had a letter, I’ve still not received anything letters whixh isn’t great but I’m chasing!

    im HER positive too! I’ll be honest I don’t take much of that on board I just focus on the treatment and getting better!! It’s all a mine field just now but all falls into place!!! Xxx

  • Offline in reply to Leanne1202

    Aww Leanne lovely long time no speak was wondering how you were doing how’s it going lovely ? Xx 

  • Offline in reply to laraj

    Hey Lara,

    yes I haven’t been in much, jjst been processing everything but all is good, well as good as it can be!!  I’m having a good week so far so it’s always positive when that happens!! 

    not so good last week, ended up on etc with migraines due the the injection that I need to take aftwe chemo!  It was unreal?! I’ve been not too bad at all in fact I’ve been so so lucky and fortunate not to suffer so bad side effects to chemo? Although I do have the sorest arm from my first dose, feels so tight and sore extend, even put moisturiser on it’s sore!!! Will have to speak to nurses as it appears to be cording! Can’t see if lasting another 6 chemos! Bar that all is good!! Bored being off work mind u haha but trying to keep busy and enjoy myself in between treatments!! 

    hope ur good xxx

  • Offline in reply to Leanne1202

    Leanne 

    Sounds like you are so positive bless you , oh no about your arm deffo ask about that can you ring the hospital you get your chemo to get it checked sounds painful. 
    it’s so boring at home I worked last year from home through my journey I hated it ain’t it funny we all moan about work getting up early ect and when it’s gone we miss it .

    love Lara xx

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