Hiya, very sorry things have changed from the initial diagnosis. What i will say, we were warned things can and do change during any cancer diagnosis. The way we had it explained to us (my wife was grade 3, triple +), the scans, the biopsies etc are simply a snapshot of 1 moment in time. Cancer being cancer, it doesn't stand still, it's not interested in what it told the specialists the prior month or week. What you get told one month, may not always be how things are the next month. Works both ways, good and bad. For example, my wife was originally pencilled in for a full mastectomy simply because it was highly aggressive, and was stage 3. After chemo, everything was downgraded as the chemo did its job, and she had a full response, so she only got a lumpectomy.

We fully understand your worries, and your confusion because when you first go into this, you think nothing will change from your initial biopsy and tests to a later set of tests, but things do change. They'll probably come back with a score regarding how likely chemo is to benefit you. Maybe it will only be a 5% benefit, maybe more, but it allows you and only you to make an educated decision about whether or not to do chemo.

A hill 

yes this happened to me there was no mention of chemo then all of a sudden chemo was mentioned .

the Oncotype is the test where they send it to America to give you a reoccurrence score mine came back low so no chemo was required but I understand your fears it was a horrible time for me big hugs to you hopefully your score will be low and no chemo will be offered and you can move on .

love Lara ️

Hi, 

I was very similar to yourself, I was advised it was a grade 2 until after my lumpectomy when it was amended to grade 3. Unfortunately my oncotype score was high enough to show there would be a benefit and so I had 6 rounds of chemo. I can honestly say these weren't as bad as I was expecting, and I finished chemo in Feb and had my radiotherapy in March. I'm now getting back into normal life. 

I found the wait for these results a horrible one, so sending you lots of love and fingers crossed your score will come back low xx

Yes this sounds similar. I'm having the oncotype dx. I'd been trying to get a dr to listen to me for over a year through and they kept saying I was too young for anything like that. I was told several times It's all in my head.  They finally referred me and even at biopsy they told me they was 95% certain it wasn't anything serious. 
 

my surgeon did say even with the test he thinks it's highly likely I'll have chemo then radio then a booster. 
 

thank you x

Thank you. How long is six rounds of chemo? Hopefully if I do need it I'll find it not too bad like you. 
 

thank you x

I'm glad your wife is doing well. See I was told that at least I was only grade 2 from the start and the nurse I had made a point of saying at least it's not grade 3 that's the bad one that's why I'm struggling. I wasn't told the grade would change but the stage might due to sizing and spreading. 

It was 4 and a half months, I had 3 rounds 3 weeks apart, then 9 weeks of weekly. I thought it would feel like forever, but it honestly flew by, especially the weekly ones. 

As others have said, at least this means you can make an informed decision on chemo and whether its right for you, although I fully understand the anxiety in the change of grade xx

Thank you that doesn't sound too bad. I'm over the initial shock now and just trying to focus on the next steps. Just felt like one step forward two back. I think if I can reduce the future risks of recurrence I'll do anything. X

The nurse had no right saying that to you. Yeah, only stands to reason that grade 3 is gonna be a worse diagnosis from grade 2, but how she said it, makes it sound like it's a death sentence. My wife is still clear well over a year later. Her cancer was in 2 nodes too. She was a boot up the backside away from being classed as terminal. It was as bad as stage 3, grade 3 could get. But as i said in the other post, she had a full response.

What's "the bad one" is people that should know better coming out with something like that. I fully understand the point she was try to make, as it was obviously intended to clam you down, but as your story proves, people that should know better, should just keep certain pep talks off the table. They have to know things can change . I mean, we were told the biopsies they took from the tissue removed after the op might be different from the biopsy samples they took pre chemo.