Hi, sorry to hear your inital diagnosis, hope you are doing ok. I was diagnosed with lobular breast cancer a couple of months ago and am now recovering from a mastectomy. I didn't see my mri images but yes they do say it's a sneakier cancer as don't present as a traditional lump.  Can you feel anything unusual? I had an indentation right next to my nipple followed by a large hard area, when I pressed that area it made the nipple indentation worse. I googled everything in a panic and it only said about small pea or grape size round lumps, not a 6cm long hard lump like mine and that's when I learnt the difference between ductal and lobular. Sorry I can't be of any help, are they going to do another biopsy to find out for sure? 

Thanks [@jjchoccy]‍ i do have a large lump which is my ductal tumour and there is a very slight indentation where the lump is but the stringy bits are a new addition.  I'm waiting for an ultrasound appt to come through which will probably end in a biopsy so have at least 3-4 weeks wait at this point! 

Hope you are recovering nicely, did you/will you have chemo?

Oh the waiting is awful isn't it. Are they waiting until they know the full extent of it to give you an indication of surgery and treatment?

Recovery is going ok but it is harder than I thought it was going to be! I will have radiotherapy and hormone therapy after this, chemo will be decided after they have biopsied the lump and nodes removed which I should find out in about 10 days time so keeping all fingers crossed they are clear and it's not needed xx

Yes the waiting is awful! I'm afraid I did get a bit cross with the consultant as until this ultrasound is done and the biopsy results back they won't give me any idea of treatment and by then I would have been diagnosed and yet had no treatment for at least 2 months by then and it seems every time you have to have something done you have to wait another two weeks.... I understand they need to wait until everything is clear to them and that there are a lot of people needing results not just me but it is very frustrating and quite scary if you think about it too much.

On the positive side my GP just rang me because he received a letter from the hospital re my diagnosis and wanted to see if I needed anything.  I was quite impressed!  I took advantage and asked him about a new large freckle (about 1cm oblong) on my face and a little lump on my neck because everytime I get something new or any aches and pains I am imagining the worst now!

Fingers crossed your nodes are clear!!  Did you have an immediate reconstruction or will you have later or decide to to stay flat?