Provisional DCIS Breast Cancer o High and Intermediate Grade

I had the unexpected and shocking diagnosis of provisional DCIS Breast cancer on Valentine's Day.

Two core biopsies were taken and both showed malignancy at intermediate and high grades of oestrogen positive 8 and progesterone positive 6 breast cancer. The area of malignancy spans at least 3.9cm minimum.

My original consultant who broke the news was very nice and empathetic and told me that with mastectomy I would not need radiation therapy or endocrine therapy but the actual surgeon on the day (there are 14 of them, so it is random who you get), before she even carried out any surgery, told me I would definitely need endocrine therapy (lovestrol) and there isn't anything to rule out needing radiotherapy and chemo and further surgery. She was so clinical, matter of fact and cold that she took away all my hope as I told her but she just told me that I​​​​ was the miserable and pessimistic one!

I am still in shock and disbelief about this new reality of my life, particularly now post-mastectomy which feels even worse. Telling my friends and family has been horrendous and I have had to cancel my Easter holidays. It is miserable beyond words and now I have to wait about eight weeks for the pathology results of the removed breast and lymph nodes. To think two months ago I was walking around oblivious to this. It was only picked up on in routine screening, although by chance I had a mammogram 10 months ago that was clear! So much for three yearly screening.

  • Firstly I'm sorry to hear of your BC diagnosis. But I cannot believe that's how the surgeon spoke to you it's disgraceful. Having to deal with a cancer diagnosis is bad enough and it's the medical personnel we hope to get advice and comfort from, not to be spoken to in that way. 
    I was diagnosed with DCIS and IDC in my right breast last October after a routine mammogram. I had a lumpectomy and sentinel node biopsy and I have just finished radiotherapy. I am going to be on hormone therapy medication for 5 years. 
    You may not be able to see light at the end of the tunnel at the moment, but life does get better. Of course nobody diagnosed with cancer gets over the thought in their head that maybe one day it will come back, but you can move on and enjoy life again. Hopefully your results will be ok, I felt the same as you and was dreading the results, my Oncotype score came back low and I didn't need chemotherapy, which was my biggest fear. 
    Please let us know how you get on xx

  • Thanks Boops for your reply. I am happy to hear that you are doing well. I hope I see the light at the end of the tunnel like you did. Xx

  • Gwen 

    sorry you had a diagnosis I had breast cancer july 22 

    at the time it seems forever but time passes quickly I'm now on my 2 nd holiday in Spain and living life like it never happened 

    youwill be the same I wish you the best love Lara ️

  • Thanks very much for your good wishes Lara, I am very glad to hear that you are doing well. How do you cope with the bad luck aspect to all of this? I find that aspect of it very hard to process. Xx ♥️

  • Hi gwendoline, I am sorry you find yourself in this similar situation to myself. My diagnosis October 23. Tumour approx 27x23 mm had it removed & sentinel lymph node. Surgeon & nurses have been fabulous I take AI for 5 years & still awaiting radiotherapy. Like you I think life very unfair & due to other health conditions for myself or immediate family. Down in the misery. Please take a day at a time,I am planting seeds to see them flower, & walk in the sunshine helps loads. Take care please stay in touch.  Pip

  • Dear Pip, Thanks for your message.

    I am very happy to hear that you are doing well.

    Was it also present in your sentinel lymph node? Are you having any side effects from the AI?

    It is all so sudden and shocking and a lot to take in and the medics talk to you as though it is all to be expected...

    xx

  • Hi gwendoline, lymph node negative.  Clearance surrounding tissue negative. AI some side effects.  Remember everyone is experiencing different things. Wouldn't say I am doing well. Just surviving limbo. Feel forgotten, long wait from surgery to see oncologist re radiation. 4 months. I have no limb limitations & fully active. Hope this helps best wishes pip

  • Thanks Pip for your message. I am very happy to hear that you have negative nodes and negative clearance. I don't know if I will though, given the malignant area stretching for at least 3.9cm and in the outer quadrant near armpit. Already I feel unlucky at being just one of the 4/100 who have a mammogram recall and then the unlucky 1/4 who consequently are found to have cancer which makes me 1/100, so just 1% chance. Also in my age bracket it is 1/49 chance. All of my aunties on both sides lived to be in their 80s and 90s (94 the oldest on my dad's side and 96 the oldest on my mum's side). I feel I will be unlucky with nodes and clearance.

    Hope the time goes fast for your radiation dates to arrive.

    Xx

  • Hi gwendoline,  thanks for your reply. I am sorry you find your the 1 in100 1 in 400 or 1 in 49. I think most of us feel like you. I remember A Mac nurse saying to me that's the better one to be when testing +ve level8 of 8 eostrogen & progesterone. It just didn't feel a good result to me diagnosed with cancer never is.Time passes & things distract you It does improve hugs pip.