Hi there, six years ago I had appendix cancer and subsequent Cytoreduction with HIPEC followed by five months of 'belt and braces' chemotherapy and yearly surveillance with CT scans and colonoscopies.
A few months ago I started to have some uncomfortable symptoms of feeling full, abdominal distension, lack of appetite and weight loss plus some bladder issues. Tests revealed some cancer cells in the bladder and a subsequent PET scan has shown widespread cells in the peritoneum. My original consultant has said on review of all the scans it is too widespread to be operable and he recommends chemotherapy to try and shrink it all to ease my symptoms and in the hope that it shrinks enough for surgery.
this is such a rare cancer apparently and therefore there is little information let alone support so I feel very alone.
Has anyone on this forum had a similar experience please. Many thanks for reading this.
