Confirmed - grade 2 invasive ductal carsenoma

Hi, got the diagnosis on Friday. Positive oestrogen 8 and progesterone 5. Not negative for her2, I think it says 2+ but consultants's writing not great!  another wait for that result to find out if chemotherapy required.  

Gutted to be coming off the hrt patches and having my coil removed, not had a period for like 15 years, my poor partner having to cope with the cancer diagnosis but then the hot flushed, brain fogged,  hot tempered scot on top of it!  Not going to be an easy ride for either of us.

I did have a bit of a breakdown yesterday, I do like girly time with friends drinking and the odd sociable cigarette,  obviously,  I know cigarettes have to go but taking away the alcohol, I found that hard. I don't drink loads but just that glass sometimes when times are hard or away with friends its a good stress reliever.  I panicked and thought what if I can't do this, what if I'm not strong enough, then it went to...why me, I've had a lot of illness and obstacles in my life and I felt quite sorry for myself. I cried quite a bit, talked it through with my partner and I feel a bit better for showing my weaker side. 

It's hard to know what to do, my daughter is in last few months of degree, she is in a happy place and suffers from anxiety about cancer as two of her aunts, married to my exhusband's brothers have died from it as well as one of their daughters. I know hearing it about me will send her into a spiral. Has anyone not told their children whilst going through treatment?  Advice very gratefully received.  Sorry for rambling. Xx 

  • Hi Hun.  Hope your ok.  IDC stage 1 Grade 2 oestrogen sensitive and Hers2 Negative. So lumpectomy on 28th March, as surgeon says just as good as Mastectomy as caught early. 

    Dye into lymph nodes day of surgery and remove some, remove cancer and some tissue. Then a 2 week wait to see if margins and lymph nodes clear. If not more surgery. But if all good 5days high intensity radiotherapy. Hormone therapy and yearly mammograms.

    Am fine with outcome. Focussing on this first part and deal with everything else as it comes up.  

    Where are you based?  As seem to be going in around same time. I'm Southend. Where are you, Badger, case4

  • Yeah that's a good idea. Perhaps I should get some new books. Xx

  • Hi Pauline, I'm in Portsmouth. I was borderline with her2 so waiting for that, 3 week delay, if that comes back negative then will mirror yours if positive then I think we go down the chemo route.  I think my op is on 24th March but obviously could change. 

    Case4 is first I believe as she was diagnosed week before me. Strange how it doesn't seem so frightening when you know others are going through it at same time x night 

  • Hello all, I got a call from the hospital today to say I have to go in again on Friday to see the consultant so I'm assuming I am Her positive and will need chemo of some sort. I've had a weep about it (more weeping!!) and feel better for a good cry. I keep reminding myself that they can treat me and I am very grateful for that. Hop you get your results soon. One of the worst bits is the not knowing. 

  • Great that it's been caught so early Pauline and that you've got a plan in place. I'm in Gloucestershire, within walking distance of the hospital, which is suddenly very useful!!

  • Case 4 

    want to just try and make light for you , it would be a oncology appointment for chemo arrangements so try not to worry that it means bad news of having a appointment.

    I hope you are feeling better after a little cry my love x ️

  • Thanks Lara - there is hopefully still a chance I can avoid it. I do feel a bit better thanks and I'm so glad the appointment is only a day away. Not too long to fret over it.

  • Case 

    I used to be same dead appointments sometimes they were good and I'd feel better but results ect were torture I no how it is , keep busy one more day lovely ️

  • Oh Case4, feel for you, at least the results seem to have come back quickly. Hopefully it will be good news on Friday, I don't fancy the idea of chemo either, don't suppose anyone does. The op with a week radiotherapy feels more manageable!

    Got my date in for the Op, 21st March, if my her2 comes back negative. Getting the letters today with the pre op assessment and op booking made it all quite real. Sometimes it all feels a bit dream like, suppose its cause I don't actually feel unwell.  I have slept a lot, not sure how you and Pauline21 have been on that front,  maybe the worrying takes it out of you.

    Anyway another day closer to getting rid of it! X

  • Yes, it is another day closer and have felt better today telling myself that treatment, whatever that may be, is the main thing. Still, yes, it would be great to avoid chemo. I've been sleeping ok every other night strangely! On the in-between nights I bolt upright at about 3am and then it all comes flooding back to me! I'm sure once treatment starts I won't be so bad!