Hi everyone, my 19 year old daughter was diagnosed with ET 3 months ago. This news was devistating to me. She still doesn't know the severity of the condition. She has ADD and because of this, I have asked the staff at oncology not to mention the word cancer as I'm worried she will spiral downwards and just give up from now. This condition was discovered when blood tests were required for another condition she has called heamocrania contuita. This is where she gets severe head pain with a mix of migraine and cluster headaches. Her eyes weep and swell which together with the pain, depilitates her. It's so hard seeing her go through all this pain. She has good days but are little and far between the bad. I've been told to apply for pip for her. Is there any other support out there in all aspect?