I've been diagnosed with lobular breast cancer. I found out by accident (reports sent to me in error) and go for my first team consultation today. I am terrified. I've spent the last week in bits.
I know exactly how you feel - I was there nearly two years ago. When you have limited information you just fear the very worst - I was convinced I was going to go downhill and die in agony not too much later. However, here I am still - my cancer is lobular metastatic breast cancer which means it has gone out into my body and is therefore not curable. But it is treatable and these days, we are told to think of it as a chronic condition. After further tests you will be given a treatment plan which will help you to see better how things will be planned for you. I have a CT scan every 3 months (various other scans at the beginning to include bone scans and MRI scan) and my cancer is now treated with tablets. No surgery, no chemo, just tablets. I do get fatigue from the tablets and there are other side effects which affect people differently, but all in all, I manage to lead a near normal life.
It would help you if you can join a group of people with a similar diagnosis - try Breast Cancer Now as they offer a lot of support. I have joined a group which meets face to face each month and we support each other. Some people have been on this group for many years, which gives us all hope.
I know exactly how you feel - I was there nearly two years ago. When you have limited information you just fear the very worst - I was convinced I was going to go downhill and die in agony not too much later. However, here I am still - my cancer is lobular metastatic breast cancer which means it has gone out into my body and is therefore not curable. But it is treatable and these days, we are told to think of it as a chronic condition. After further tests you will be given a treatment plan which will help you to see better how things will be planned for you. I have a CT scan every 3 months (various other scans at the beginning to include bone scans and MRI scan) and my cancer is now treated with tablets. No surgery, no chemo, just tablets. I do get fatigue from the tablets and there are other side effects which affect people differently, but all in all, I manage to lead a near normal life.
It would help you if you can join a group of people with a similar diagnosis - try Breast Cancer Now as they offer a lot of support. I have joined a group which meets face to face each month and we support each other. Some people have been on this group for many years, which gives us all hope.
