Hiya

This is exactly how my wife was diagnosed, and these chat boards are littered with similar stories. So yeah, it happens.

Whilst biopsy is the only definitive test, they are rarely wrong. Can they be wrong? Yes, there are stories the internet over telling of this exact thing. But in the grand scheme of things, it's rare that they are wrong.

My wife was told not to go home, thinking it would come back as anything but cancer. They were correct. They see this a lot in their job and they're making an educated guess. But like any "guess", they can be wrong. I mean, someone has to be in that small minority where they get it wrong, so why not you? However, I'd use this time as to wrap your head around it all, so you're not having to pick yourself up from square one all over again during your next appointment.

The official diagnosis wasn't the nightmare it could have been, and that's because we accepted the fact she more or less had cancer before the results proper were in. Assume the worst, and it can make the official chat less daunting. Won't make it a walk in the park, because nothing can, but it helps going into the appointment with your eyes wide open.

Believe it or not, the cancer being hormone fed is a good thing as it opens up more treatments. So don't overly fret about that part. My wife had triple positive, had 2 tumours, and 2 lymph nodes involved, 14 months later she is considered cancer free. She had a total response to the chemo. She was also a kick up the backside away from being terminal due to how locally advanced her cancer was. She was also down for a full mastectomy, but due to her complete response to the treatment, she got a lumpectomy in the end.

Hi klf 

welcome 

I just read your post the exact thing happened to me last July , I was told it's suspicious week later it was confirmed.

I am now back to living my normal life like it never happened.

good luck I'm here for a chat good luck take each day at a time it's a lot to process x 

Thank you so much for responding ProfBaw your words make total sense. The last couple of days I've been saying that exact thing why shouldn't I be the one they get wrong but also aware if I keep that up I'm going to have to go through this again in a couple of weeks. Even though I had a sense it was cancer I still didn't expect it to be so clear on Thursday, but I'd much rather have all the facts I don't want anything sugarcoated. I'm so glad your wife is doing well, hearing stories like this are a massive boost. I feel very positive about the fact she said it's not in my lymph nodes and looks localised. The waiting is hard I think when I know what it is I can focus on the getting rid of it part. 
Thank you also for the hormone info too I didn't know that so that's also a reassurance. I'm berating myself for going on HRT but I was really struggling with anxiety at the time and it really helped me through a difficult patch. 
Many best wishes to you and your wife Xx 

Thank you so much laraj I appreciate your message. I'm so glad you're back to your normal life so quickly that is very encouraging. Very grateful to have found this forum Xx 

Never berate yourself for doing things such as taking HRT. The vast majority of women taking it never find themselves in the position you now find yourself in. No one knows if you would have been in this position anyway had you never touched HRT. Nothing you did caused it, it's just sheer bad luck. No one asks to get cancer and you're not to blame in any way. Unless there's an obvious genetic connection, you will never know why you developed cancer (if it does come back as cancer). Like i said, it's just a lottery in life.

My wife went through the same "what if" scenarios. I think it's natural to do so. But you ultimately arrive back at the "just sheer bad luck" conclusion. It's wasted energy trying to find answers when it comes to the "why me".

You also have a positive to focus on, it not being in your lymph nodes. It may mean you require less treatment. Easy for me to sit here and say this as we've sat through it ourselves, but looking back, we were damn lucky in some respects. Your tumour is also a lot smaller. My wife's tumour was 4.5cm, and the deeper one was 2.5cm. Not everyone requires the same treatment, so it's never a one size fits all scenario.

Thank you ProfBaw you've really helped me to feel a lot better today :happy:

Klf 

I hope that you are the one where they get it wrong that can well happen .

for me the time I went I had never felt so well in my life I'm 48 I went through sheer paranoia as my freind was diagnosed a few months before could not feel any lump it's lucky I sent my lump was 1.5 I had grade 1 to 2 her2 negative, I had a lumpectomy and 5 rounds of radiotherapy I did not require chemo as I had the Oncotype test where they send your tumour to America and it gives you the detail on your tumour and whether chemo will benefit at all in my case I had a low score and I now take tamoxifen daily and heard horror stories about them but I have found them no trouble at all .

my life is right back where it was before my journey I need to always come back here as it helped me so much I feel I can't leave please stay here for support if you need it you may walk away next week I hope so but we are here akways take care good luck lovely ️

HI KLF49,

A very warm welcome to our forum.

I am sorry to hear about your worries, but can assure you that these are all perfectly normal.  I lost my Mum and several other relatives to breast cancer, then was told, at my first breast clinic appointment, that they were pretty certain that I had cancer. Unfortunately, when the biopsy results were returned, it proved that they were right. This came as a terrible shock, although I cannot explain why, as I had always expected that there would be a genetic connection. 

I was fortunate that it was caught early, had a lumpectomy and took Tamoxifen for 1 year. After 6 months, I discovered a larger lump in my other breast. Again, my surgeon was pretty sure that it was cancer, but biopsy proved that he was wrong and the tumour was benign. Fast forward another 6 months and I discovered a second lump, in the original breast. This time I had a double mastectomy, followed by Letozole for 6½ years. I have found a tremendous advancement in diagnosis, treatment and after care of cancer patients. There was just no comparison between the experiences which both Mum and I had. That was all 13 years ago and, I still lead a busy and fulfilling life.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thank you so much Jolamine I'm so sorry for all the things that you've been through but so glad that you're now well and living and full life. I just felt completely detached over the weekend but last night I had a good cry and feel better for that release. I was beginning wonder why I wasn't having any emotional reaction to this! I'm going to try and keep busy until they call me. I love nature and being outside so need to try and keep up my normal routines as much as possible and keep busy with work. I'm also off to the cinema later this afternoon with my two closest friends which will be good. Thank you for replying I'm really grateful ️ I don't know anyone who's had breast cancer apart from my grandmother but that was over 20 years ago so this is a real lifeline Xx