Hi there i have just found this forum. I have ET i am 52 and was sent for blood tests april 2021.because i was feeling unwell migraines visual problems very very tired The Blood tests showed hi platlets so i was sent for a biopsy which showed i am jak2 positive .I had a mini stroke in 2018 and i had deep vein thrombosis in 2020. So i was already taking a blood thinner the consaultant put me on hydromoxide 500mg 3 days a week and i had a blood test 3 weeks ago to see what my levels are and they have nt dropped so i am now on 500mg 5 days a week . I will br going for blood tests next week to see if the new dose has dropped my platlets. Feeling so so tired still head ached have gone but get pins and needles more now in hands and feet and chest. Finding it hard to cope with working full time anyone else feel the same or reduced there hours or stopped working
