Advanced bile duct cancer

Hi all I hope you are well. It's been just a few weeks that we found out my dad has advanced bile duct cancer. It was sudden and was only found because he had ongoing abdominal pain which all of a sudden became excruciating and his liver function was abnormal. I managed to get an urgent referral through the GP within a couple of days he was diagnosed.

He's currently being treated for jaundice, he's only 58 They say he can only have palliative chemo there's no other treatment option and they are saying he's got less than a year even with palliative chemo. We are all trying to be positive. I don't know if I'm abit in denial but I cannot fully accept the expected life span they have given based on the outcomes they have seen in patients though when checking online the survival statistics are not great. I know they only give an estimate but they said with this cholangiocarcinoma patients who are operable only live upto 5 years only a small percentage actually live longer but then there's so many people iv read posts saying they were given a few months and years later they are still here (but they had other cancers). I believe in miracles and I also know when it's your time to go it's your time but if there's anyone who has or knows someone who's had bile duct cancer in late stage and is still here if you can just advise please on how  to deal with what's to come. I want to be optimistic but am I kidding myself thinking he'll be here still in a few years or even in 10 years time?

It's just been a shock I think I have been dealing well with it but i feel I need insight from others who have been or are in a similar situation.

 

Best wishes to all over the festive period. I hope you have been able to spend time with loved ones.

 

  • Hello Safi97

    I'm so sorry to hear about your Dad's diagnosis. It's understandably a difficult time for you all at the moment and natural that you want to hold on to some hope that he will be with you for a long as possible. 

    Hopefully if we've anyone here who has had a relative with bile duct cancer they will post to share their experiences with you. In the meantime, I wonder if you might find it helpful to talk things through with one of our team of nurses. I'm sure they will be happy to offer any advice and support they can. If you want to talk with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040 (excluding bank holidays). 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hello Jenn,

    Thank you I will keep their number handy :)

     

    Best wishes,

    Safi97

  • Hi all I hope you are all well 

    I initially came on here for advice regarding my dad's treatment options and to just get some sort of guidance on what things may look like going forward in terms of my dad's quality of life. 

    I'm on here now to just say truly death cannot be predicted and it comes when it's time. Sadly, my dad passed away early morning Saturday 14th January after being rushed to hospital Friday morning with low blood pressure and blood glucose he was found to have sepsis due to a tear in the bowel which Dr's decided they couldn't operate on. I knew cholangiocarcinoma was meant to be aggressive but didn't realise my dad would be gone within 2.5 months. I feel blessed that myself and my siblings were able to take care of him while he was here and that he didn't have to suffer longterm. 

    Now we look back to the happy times of our childhood and more recent years looking forward to meeting again in heaven.

    Take care all

  • Hi Saf97,

    I just want to pass on my condolences. I have no knowledge of bile duct cancer, but it seems to be so aggressive. Sorry no one on here was able to offer you any advice in December. It's really good that you have your precious memories that can't be taken from you.

     

    Be kind to yourself x

  • Hi Safi first of all I'm so sorry to hear the news about your precious dad nothing compares to the pain of losing a loved one but like yourself I  believe very strongly that we all have a time when God calls us home to Heaven ,its wonderful to know that when we go from this life a much better life awaits us and once there we would never want to leave, for us still here its hard because we miss them so much but at the same time we are grateful that they are no longer suffering so that;s what keeps us going and the knowledge that one day we will be with our loved ones again ,God Bless you your family and your dad x

  •  

    Hi Safi,

    I am so very sorry to hear that your Dad passed this morning. He was fortunate that you and your siblings were able to take care of him at home until his last day. It is good to hear that he is no longer suffering, but it is still a sad loss.

    Thinking of you and your family at this difficult time.

    Jolamine xx