Explaining my diagnosis to autistic brother

Hello

I have recently had a breast cancer diagnosis, but I am struggling with how to tell my 22 year old autistic brother. We lost our mum 3 years ago and he still struggles with the grief. I'm worried that he will hyperfixate on researching cancer and spiral into a black hole. He's currently living in supported housing but is 30 miles away from me.

I need to tell him something soonish as he will likely no longer be coming to our house at Christmas as my first chemo appointment looks like it may be around that week.

Would appreciate anyone who has experience of autistic family and if you told them, any pointers on how to start and manage the conversation...

Thank you so much in advance.

  • Firstly, I am sorry to hear about your diagnosis and the loss of your mother. That is a lot for both you and your brother to deal with.

    I don't have any autistic family members, but I do work with students with autism and I have some traits myself. As I'm sure you know, autistic people differ greatly from one another and his general level of understanding - whether he has an intellectual disability in addition to autism, for example - will also have an impact on how you would speak to him, as would whether he has any co-occuring mental health difficulties, such as depression.

    Of course, you know your brother best, but without knowing him (so I may be completely wrong with regard to him), I would say that hyperfocussing on something like that isn't always a bad thing. It is something I tend to do and while overdoing it can be problematic, it reassures me more often than it worries me. Everybody (with the exception of one colleague, who I suspect has ADHD) objects to my doing it, thinking that it's a sign of anxiety or something, but for me, at least, it generally isn't. It's just how I react to pretty much anything.

    Of course, your brother may be different here, but I just wanted to say that his response may be different to yours, but it doesn't necessarily mean he is struggling with it more. He may be; again you know him best, but sometimes reactions are just different.