CT results :( not the news we wanted to hear.

Hi  

we had the appointment this afternoon... so it turns out it has spread into part of the liver aswell as the bowel.

now my husband has to have a PET scan, MRI, and a further biopsy.... 

I've never felt more scared than I do right now!! 
so another 2 weeks until scan and further waiting... i just dont know how to get through this without panicking every 5 mins. 
 

xxx

  • Oh Lulu Darlin' My heart goes out to you!  I am in the very same position.

    We got the news on Thursday that my husband's cancer has had a spread into his pelvis and they think a slight showing on his lung. We had a phone consultation with the urologist today and he told him his kidneys have swollen and that he may now have to get a nephrostomy done or a stent fitted to stop any blockage in the kidneys as they think because the cancer is in the pelvis it could be causing a blockage.

    He already has a stoma bag in place for his poo so this would mean another one for his pee. He doesn't know if he can handle this as I think the bag for pee would be placed on his other side the side he sleeps on so doesn't sound practical. A  stent means it would go inside him I think so that would be a better solution if they were able to do that. I'm all for him getting it done and anything they want to throw at him for this whole thing but then again that sounds selfish but I want him here, I want him alive I want him to see our grandaughter go to school as he said he wants to.

    The alternative well there is none if his kidneys decide to pack in its more or less `kiss yer *** goodbye` and I just find that so unbearable to contemplate. So we see the oncologist next week to find out what's to happen. He and the urologist will be liaising with one another over it. Yes I get you! I'm doing nothing but panick. I can't eat properly i have constant diarreha and I know this is what it is down to.

    My husband is hardly eating because his oncologist put him on a course of water tablets that are just totally drying up his mouth and causing him to feel tired. He is so depressed too and I just hate seeing him like this. *** cancer I just wish it would `do one`. Take care lulu try to stay strong hard I know but I think it's all we can do.

    Vicky x

  • Hello again,

                        the bad news keeping coming does little to help an already seriously troubled mind,and a prolonged wait is the very last thing you would wish for. 

    Hopefully the spread is confined to just these two places, and that the spread into the liver will be on the outer lobes, well away from critical areas that will allow surgical excision with plenty of margin around the tumour site.

    Having been through exactly this myself l will not make out that it is anything other than a long and difficult journey, but one that can lead to the destination of a complete cure and cancer free,

    l would urge you both to contact your local Maggies centre to get as much support as is possible at the outset of a long journey,  you will need it, and if my experience was anything to go by, such a tremendous help in coping with a such a traumatic event.

    Life can be a challenge and a ***, so l can only wish for you that your personal  *** does not prove to be even more challenging over the forthcoming tests,

                                                                                                         David