lung cancer diagnosed today (partially)

hello ..new member..have been told today over the phone that there were cancerous tissues found in a biopsy of my left lung   regarding mass in left hillum and 2 or 3 small nodes lower down (confined to same area)..i assume they mean the small nodules were all together.  i phoned up for biopsy info, but they dont have all the info from the tests ive had yet mainly the head ct scan and petscan. until they have it all they wont know if its spread and so on and so forth. my adventure started around last xmas when i coughed up blood in phlegm .i carted myself off to A&E  was given xray and blood tests and was told  lungs didnt show any change,was given anti biotics and went on my way.  little flecks of blood and sometimes bit more at times continued now and then till 6 weeks ago when it happened again ..i was in lake district and went to A&E  again and had xray which was fine then given ct in case it was pulmonary embolism  and only then was a mass found. since ive had 1 more ct scan on abdomen /lungs..1 head ct scan..1 breathing test.1 bronchoscopy.1 petscan 4 days ago.  anyway i wasnt exactly surprised when lung nurse told me about cancerous tissues today ,but am obviously frightened  etc. the lung mass was on first ct approx 41mm by 21 mm ..now although i was told its small ,im wondering how they calculate size is it 41 mm multiplied by 21 mm or is it as i gathered the nurse to say that 41 mm (the diameter) is the size cos if instead its both measurements multiplied by my reckoning its around 8 centimeters  which is rather big to my ears. anyhow over phone was told until final info was looked at  stage cant be calculated and possible treatment cant be decided until all details have been looked at...for me a born coward even regarding blood tests let alone anything else its left me feeling pretty much down in the dumps,and i hinted that i might not even be able to go through with (if decided) chemotherapy ..i dont know if i can  and if i did ..to  what end ? many people think chemo is worse than the condition  almost ..ive said rather than go to see the doctor tuesday to get a full appraisal of everything, id sooner get a quick telephone call from them explaining ,with not too much detail ,the extent of things ..i dont want to ask how long ive got left because if i get the answer i dont want, i cant un-ask the question. i feel perhaps its better not to know. ive worried since first possible lung cancer verdict but kept my spirits up by thinking it might not be cancer ..well it is  and i wished i hadnt pghoned them to be honest..ok im 74 and none of us are immortal but even so  ,and by the way feeling well at this moment in time but have been told that isnt uncommon...tks for listening  kind regards

  • Hi Rupert 

    Don't panic or be scared. I had a much bigger ardenocarcinoma than that, left lower lobe removal with wedge from upper lobe, 4 cycles of chemo and now on dose 12 out of 17 immunotherapy and doing well. Now i am younger than you at 57 and can't say what stage and grade you'll end up with or which treatment plan but I will say this:

    Be positive all the way, chemo affects people differently but is not always awful, that's a fact! I walked through mine with only a few episodes of constipation for which i was given loads of laxative. Don't even think you can't do it, if offered at least try it and just take it as it comes, you can always ask to stop if it's rough on you.

    On another note, don't even think to ask how long you have left. If it's localised,  the treatment maybe with a view of being curative.

    Keep your chin up.

    Take care

    Xxx

  • thanks for your reply Hopeful....the problem,or one of them ,which i assume everyone afflicted with this nasty illness suffers is right now my mind is going in 100 different directions..i.e what if this?  what if that? etc ..plus its a strain acting in front of the wife as if im not that concerned  so as i dont pilre the worry on her too. in fact i havent told her of the biopsy result yet ,as far as she knows its suspected cancer .at some time ill plainly have to say but right now im keeping it to myself .maybe i should have waited for complete verdict tuesday - but i didnt . oddly enough ,or maybe not i seem to be more concerned about having more investigative  stuff done  i.e tests-chemo or whatever ..i cant right now think of the "bigger picture" maybe just as well.
                                                                    but the moral of this story,if there is one, is that for those who cough up blood in phlegm,even if its only a little, demand a ct scan ,ive learnt since that xrays arent very good at finding these things most of the time  whereas ct scans apparently are .
    kind regards