Hey everyone

I was diagnosed with CHL 2 weeks ago. Likely nodular sclerosis.

I've had my first appointment with the oncologist last week and doing my first PET scan tomorrow. I also need to repeat the core biopsy as the tissues had a lot of fibrosis. This has been booked for the 18th. My follow up oncology appointment will be on December 1st, once I'll get the new biopsy results and the MDT meets to discuss my case.

Thing is I'm thinking to move back home (Italy) to get treatment. This is to be closer to my family, not having to worry about rent/bills/cooking for a few months. I have the option to work remotely and most of all the privilege of a supportive family.

The oncologist said this is possible but I was thinking to ask her not to have the new biopsy done here but in Italy as apparently they require an excision biopsy before starting chemo. This is also to speed up the process as my anxiety is sky rocketing and waiting until December and more is making me feel even sicker.

So all in all I was wondering if anyone has been in the same situation of living abroad and moving back home to get treatment? How is it going/did it go?

From your experience, do you think the oncologist will agree to not repeat the biopsy here? I'm also thinking of asking not to be put on steroids as I have an history of binge eating disorder and the hunger given by steroids would be too much of a trigger. Do you think it's possible to ask this?

Sorry for all the questions! Just trying to figure things out