dad newly diagnosed

Good Morning 

My first time posting here i dont know  where to start im struggling.

My dad has been diagnosed with cancer of the spine he was transfered to hospital to have surgery to have it removed,after checks there we was told he his too poorly and too high risk for the surgery to go ahead he was then transfered to hospital after more scans and tests there we have been made aware there is fluid on his lungs and another lump found on his other lung.

We have been told he will have the fluid drained  and a biopsy taken from the lump we was told this could take a total of 2 weeks to get the final results from that. My dad is riddled in bed sores and as lost all feeling from his waist down we had the news that he will never be able to walk again.

So far the plan is to make him comfortable with the help of radiotherapy and wait for the other results to come in.

Another problem we are facing is he lives in privart rented accomadation and the landlord will not allow any work to be carried out  in the house to enable my dad to return home where he has lived for almost 15 years  we now have to find a property which is already adapted for wheel chairs ect to make things easier for when he can go home.

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    Hi Kerry,

    I am so glad to hear that your dad's care team allowed him to come home and that you now have a good support system in place. It is amazing how quickly things can be put in place once a decision is made. Has he been supplied with a hospital bed at home?

    It is tragic that he is so young and that your younger siblings may never get to know him as well as you and your older siblings do. You sound like a close family and, I am sure that you and your older siblings will look out for the younger ones and be able to remind them of what a good daddy your father was. Have you told them how ill your dad is? If so, how have they taken this sad news?

    It is always very difficult to know when the end is near. Have the doctors said any more to you about his prognosis? You will normally find that people sleep more and eat and drink less and less towards the end.

    Can I ask what age you are? This is one of the hardest situations that you will probably ever have to go through in your lifetime. I hope that your dad feels happier in himself, now that he is home amongst his family, as he wanted to be. Just be there for him. Make sure that his carers are doing all that they can for him and if you feel that anything can be improved on, don't be afraid to say so.  Watch that he is as comfortable as he can be and that his medication is controlling his pain as well as it can - sometimes this may need to be topped up, as time goes by. 

    Make the most of any opportunity when he is awake to say all that you have to him and, don't leave anything left unsaid. Tell him how much you love him.

    This is a devastating time for you, especially with everything happening so quickly. Have you thought of speaking to a counsellor? There are a number of cancer charities which offer this service free of charge. I don't know what services are available in your area. Do you have a Maggies Centre or The Haven near you? They certainly do this, but there are also several local organisations. Your dad's care team, or your GP should be able to advise you. It can be helpful to talk through your worries with someone and they may help you more about what to expect. There will be a similar service offered through the school too, for your younger siblings.

    I am so sorry that you are having to go through this and, I agree that it does seem very unfair. However, sadly life is never fair and death is no respector of age, creed or colour.

    I am thinking of you and your family and am always here for you.

    Kind regards,

    Jolamine xx

  • Hiya 

    im 35 and we have heard of Haven we had Haven careers in for dad.

    unfortunatly dad lost his battle this morning he was comfortable and glad we had the chance to fill his wish and get him home. 
    I'm still numb and confused. Dads cancer was in his lungs then spread into his bowels aswel as his spine he also has stage 4 serousion of the liver too. 6 weeks ago when we found out he had this nasty disease we was told he was gunna be with us for 3-5 months it's all happened so fast I carnt get my head around it . I'm sorry I keep going over the same things 

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    Hi Kerry,

    I am so sory to hear this and offer you and your family my sincere sympathy. You will always feel glad that you managed to fulfil his wish and got him him.

    It is only natural that you feel numb and confused by all that has happened in such a short space of time. Unfortunately, the time scale given is only a 'guesstimate' by his care team. There is no definitive time scale and prognoses can be out by quite a considerable time on either side.

    It is so hard to accept what has happened and you will unfortunately find that you remember him as he was recently for some time to come. Gradually these meories of suffering and pain will lessen and leave you all with memories of happier times.

    I am thinking of you all and always here if you want to chat.

    Kind regards,

    Jolamine xx