Diagnosis - sarcoma

Hello all

I got my results on Tuesday; unfortunately it's a type of sarcoma; Undifferentiated pleomorphic sarcoma. From what they say they caught it early and it's superficial and all I might need is surgery and radiotherapy. I'm going to need a CT scan to see if it spread to my lungs as the sarcoma is on my left shoulder blade

My questions are, will this affect my mobility? I'm left handed and though I can do things with my right hand I'm not that good.

Also what are side effects of radiotherapy to the shoulder, as I'm also a carer to a parent with a degenerative condition when I'm not at work I need to be able to take care of them.

I have not yet told my family as I want to know fully what my treatment will be and I also don't want to worry them. They have stressful jobs and we've had a difficult few years having lost a parent too. My work know though and they are being supportive 

Many thanks for your time :) 

Parents
  • Hi MomoLennon

    i hope you don't mind me reaching out. I am currently awaiting a diagnosis (highly likely sarcoma) and struggling to process this all so wanted to find someone on similar situation. I am 36 years old and just gave birth to my first baby so it all feels rather cruel.

    hope your treatment is going well, would've great to connect.

  • Hi

    I'm in the same boat as you. Waiting for a diagnosis of what might be sarcoma. I have had an ultrasound and an MRI so far both of which were inconclusive. I'm now waiting for the results from a biopsy. Hopefully these will be available in the next 1-2 weeks. I keep jumping to the worst conclusions. My 'lump' is large and painful so is a constant reminder that all is not well with my body. I keep looking up things on google and sometimes it seems reassuring and at others it seems really 

    I'm terrified of being told it's already spread.

    I wish you all the luck with your diagnosis and hope its good news

    H

     

  • Hello Hanna62 and Momolennon

    I would really love to hear from you both about your experience.  They both sound similar to my diagnosis and your fears mirror mine.  I would be extremely grateful to understand more about your surgery and how it affected you immediately post surgery and longer term.  

Reply
  • Hello Hanna62 and Momolennon

    I would really love to hear from you both about your experience.  They both sound similar to my diagnosis and your fears mirror mine.  I would be extremely grateful to understand more about your surgery and how it affected you immediately post surgery and longer term.  

Children
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